Postby BeansMama » Mon Oct 03, 2016 1:10 pm
I'm sorry you have had to find your way to these boards, but glad you found us. The support and knowledge you will find here is amazing.
All of us understand the fear and anxiety you experience when you are first diagnosed and don't have all of the information. It seems like it takes forever to get all of the tests done. Usually once those are complete everything else moves rather quickly.
One bit of advice I will give you is stay away from google and don't put too much worry into the statistics. They usually include people that have other underlying conditions or people that for whatever reason do not seek treatment. Because of that in my opinion the statistics are not completely accurate. I believe that you make your own statistics, anything anyone else tells you is just a number. I also believe that maintaining a positive attitude makes a big difference.
I had a 9 cm tumor in my sigmoid colon that unfortunately spread to my liver. I don't have a ton of knowledge when it comes to polyps, hopefully someone here with more knowledge will respond to your post and help you in that area.
Have you gotten a printout of your biopsy results? If not ask your doctor for a copy, often there is additional information in the report that the doctors don't mention.
I also maintain a binder with all of the information on my surgeries, scans, lab work, etc. It helps to have your own copy. It has come in handy for me a few times.
I will add you to my prayer list, praying there is no spread.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016