I have one round of Xelox left, but have been having a great deal of trouble with increasing tenesmus and gastrointestinal bleeding and blood clots the last few rounds. I self reported this to Oncologist 2 rounds ago, he said it was late effects of radiation and would go away after I was done.
Meanwhile, I lost at least a pint or more blood / blood clots rectally this last round (killing my hemoglobin and platelets in the meantime), severe enough I was told to go to emergency room. They told me to keep taking the Xeloda but I have had trouble taking Xeloda as prescribed this round. I have to go off them every three days or so to heal and then when I restart, the effects come again, three days later. Not only am I compromising my treatment, which bothers me ALOT, the pain and inconvenience of the tenesmus (at least 50 trips to bathroom between 11:30pm to 3am last night, mostly for non productive "pushing" my rectum insisted on) is terrible.
I have not seen anything about this on the forums. Anyone familiar? I'm not sure what my doc is going to recommend for the last round this coming week. I don't have a port and have done all oxi by vein, and I was wondering of 5fu boluses are easier on the digestive system than the pills.
Thank you for any suggestions to take to my doc. And thanks for all the that I have learned so far from you all.
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