Hi all.
I've been through 6 months of folfox - what neuropathy in hands or feet i had gradually disappeared. I've had approximately 1.5 years of folfiri. Yes, had the diarrhea, but easily controlled - maybe maxxing out at 3 lomotil in one day. At some point, i had butt burn so started using calmoseptine. Unfortunately, i dont recall when it started or worsened. Just started (1.5 treatments) folfox again.
I'm thinking the butt burn is worse or maybe my tolerance has decreased. It feels like passing acid stools, and my anus and rectum hurt for about an hour after every bm. Not a problem sometimes, but somedays, a real problem.
Instead of just accepting the pain i decided to give a call into the pain doctor to get his opinion and see if there is something better than calmoseptine.
The reply came back that this could be neuropathic and he thinks a low dose (100mg gabapentin nightly) could help. I have seen so much on this board about hand and foot neuropathy butt never heard of butt neuropathy!!!!
I thought this was all just because of change in ph of stool. I understand we can't fix that, and the oxy and ms contin don't have an effect on this, so is it maybe worth a try? I am going to run it by my oncologist tomorrow, but thought I'd throw it out here too.
Thanks for any insight or opinions.