rmblack wrote: I know that I'm going to have to get over the uncomfortable feeling of explaining my decision to him. It's just hard because I don't want him to feel as if I don't trust him. I
rmblack wrote:Yes I had a scan at MD Anderson this week and he reviewed the scans and said NED. I'm still stage 4 due to the fact that there was a cancer cell found in the abdominal wall. I know that I'm going to have to get over the uncomfortable feeling of explaining my decision to him. It's just hard because I don't want him to feel as if I don't trust him. I just have to find the nicest way to say it. I'm glad that you guys think that MD Anderson is so reputable. It makes me feel better about my decision to go with the treatment plan there. It's scary because I feel like I'm not doing anything to fight cancer. And in my mind, I feel like I should be fighting. But apparently there is nothing to fight right now!
rmblack wrote:Yes I had a scan at MD Anderson this week and he reviewed the scans and said NED. I'm still stage 4 due to the fact that there was a cancer cell found in the abdominal wall. I know that I'm going to have to get over the uncomfortable feeling of explaining my decision to him. It's just hard because I don't want him to feel as if I don't trust him. I just have to find the nicest way to say it. I'm glad that you guys think that MD Anderson is so reputable. It makes me feel better about my decision to go with the treatment plan there. It's scary because I feel like I'm not doing anything to fight cancer. And in my mind, I feel like I should be fighting. But apparently there is nothing to fight right now!
rmblack wrote: I just have to approach it in a way that doesn't say, "you were wrong".
I've been on the Erbitux for 3 months and my onc told me I was looking at being on it at least a year or more. I've been so depressed with this treatment plan. Its the reason I wanted a second opinion.
Pita wrote:Glad to hear you have a good second opinion.
My Onc put me on Cetuximab/Erbitux from 2/23-3/29. I couldn't tolerate the rash and told him I refuse to have it anymore, bad enough having cancer and then having a treatment that gave me no quality of life, didn't see my grandkids for a month and the absolute worst part was not being able to sleep due to the itching and burning.
One of the main things I've learned since being a member of this site is to take control of your life and your treatment. Sure I trust my Onc but if I'm not comfortable with a decision of his and there is an alternative, that's what I'll ask for and get.
Best wishes and prayers to you rmd...
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