Update on my husband Ron!

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ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Update on my husband Ron!

Postby ronswife » Sat Jul 23, 2016 4:54 pm

As you know, Ron has stage 4 colon cancer that has spread very extensively to his liver. When he had his surgery to remove the cancerous tumor, his surgeon told me she would be SURPRISED if he even lived another TWO YEARS!!!

My husband is MUCH better than he was just a few months ago! Ron has had 6 chemo treatments and had a CT scan on 7/14. The doctor was very impressed with the results of his treatment and said that Ron had a much FASTER reduction in his cancer than most patients!

As a result of this, they are discontinuing a chemo that caused him severe skin issues and are putting him on only ONE chemo drug every THREE weeks instead of the normal 2 weeks! Ron's next chemo is 8/4, for only about an hour and a half.

Also the 48 hour bag that he had to wear is GONE!! He HATED that thing, since it beeps 24 hours a day and it always ruined his sleep for the 2 days after chemo!! GOOD RIDDANCE, and he is SO happy!!

They are adding a chemo pill to his regimen. He will take 2 pills of 500 mg each day of Capecitabine. PLEASE pray that he has only MINIMAL side effects from this new pill and that his treatments CONTINUE to work!!!

I am SO lucky in that I have SO very many kind folks like you praying for him! This DOES make a huge difference!!!!!

Thanks SO much! Have a great week, and God bless ALL of you for your very kind prayers and good thoughts!!!

Ron will need a special kind of radiation and we may have to travel to NYC for an HAI pump, that pumps chemo directly into the liver!

:)
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update on my husband Ron!

Postby DarknessEmbraced » Sat Jul 23, 2016 5:11 pm

Thank you for the update! Glad Ron is doing so well! I hope that his chemo and radiation go well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sat Jul 23, 2016 5:14 pm

Thanks SO much Darkness!

:D
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.
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NateA
Posts: 115
Joined: Sun Aug 02, 2015 7:41 pm
Facebook Username: Nathan Drew Allen

Re: Update on my husband Ron!

Postby NateA » Sat Jul 23, 2016 5:23 pm

Go Ron! Keep kicking butt!!
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4
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SugarBubbie
Posts: 239
Joined: Sun Jun 12, 2011 3:55 pm
Facebook Username: Rhonda Pinkston
Location: Texas

Re: Update on my husband Ron!

Postby SugarBubbie » Sat Jul 23, 2016 6:53 pm

Congratulations on the good news! I hated the bag too and so did my little dachshund who thought I was hiding a new puppy in it. He would give me a "look" every time I had to wear it. Lol
DX Stage II anal cancer 2007 age 57
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"
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ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sat Jul 23, 2016 7:31 pm

SugarBubbie wrote:Congratulations on the good news! I hated the bag too and so did my little dachshund who thought I was hiding a new puppy in it. He would give me a "look" every time I had to wear it. Lol


Thanks and what a CUTE story!!

:lol:
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.
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jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Update on my husband Ron!

Postby jhocno197 » Sat Jul 23, 2016 9:03 pm

Awesome!! I love when people get good news. :)
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Update on my husband Ron!

Postby AussieAssCancer » Sat Jul 23, 2016 9:45 pm

Woohoo! Always good to hear news like that :D
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/
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ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sun Jul 31, 2016 7:20 pm

Ron goes on the 2 daily 500 mg tablets of Capecitabine on Thursday, 8/4. I picked up this medication yesterday, Saturday, 7/30. The paperwork that came with it just BLEW us away!

As you know, Ron has had many blood clots in both legs and also a moderate sized one in one of his lungs.

Well, this new chemo pill can cause FATAL bleeding, especially if you are on blood thinners! Well, Ron has been on Lovenox since 4/21. The clots are finally resolving themselves, thank GOD and his leg pain is about GONE, at LAST!!

The info on the drug also said that if you take the blood thinner AND this medication, you could have severe bleeding! Also, Ron will start Avastin on 8/4 via infustion and THIS drug CAUSES blood clots!

Ron is calling his onc first thing tomorrow morning, 8/1! We are both VERY fearful!

Please offer any advice you can and PLEASE keep us in your prayers!!

Thanks Much!

:( :? :?: :x
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update on my husband Ron!

Postby DarknessEmbraced » Sun Jul 31, 2016 7:35 pm

How scary! Glad you are calling his oncologist!*hugs* I hope they can find an alternative treatment for Ron.*hugs* One that won't cause excessive bleeding with the blood thinner.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Update on my husband Ron!

Postby midlifemom » Sun Jul 31, 2016 7:39 pm

ronswife wrote:

The info on the drug also said that if you take the blood thinner AND this medication, you could have severe bleeding! Also, Ron will start Avastin on 8/4 via infustion and THIS drug CAUSES blood clots!

:( :? :?: :x


I believe Avastin causes bleeding, not clots. Although maybe theres a relationship there i dont know about.
Glad to hear leg pain is gone. :)
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
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mypinkheaven
Posts: 459
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:
Contact mypinkheaven

Re: Update on my husband Ron!

Postby mypinkheaven » Sun Jul 31, 2016 7:51 pm

1000 mg. per day of Capecitabine is a low dosage, but I'm glad you're double checking with his doctor. Hope it all goes well!! :lol:
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping
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Nik Colon

Re: Update on my husband Ron!

Postby Nik Colon » Sun Jul 31, 2016 8:56 pm

ronswife wrote:Ron goes on the 2 daily 500 mg tablets of Capecitabine on Thursday, 8/4. I picked up this medication yesterday, Saturday, 7/30. The paperwork that came with it just BLEW us away!

As you know, Ron has had many blood clots in both legs and also a moderate sized one in one of his lungs.

Well, this new chemo pill can cause FATAL bleeding, especially if you are on blood thinners! Well, Ron has been on Lovenox since 4/21. The clots are finally resolving themselves, thank GOD and his leg pain is about GONE, at LAST!!

The info on the drug also said that if you take the blood thinner AND this medication, you could have severe bleeding! Also, Ron will start Avastin on 8/4 via infustion and THIS drug CAUSES blood clots!

Ron is calling his onc first thing tomorrow morning, 8/1! We are both VERY fearful!

Please offer any advice you can and PLEASE keep us in your prayers!!

Thanks Much!

:( :? :?: :x

I think you have the bleeding and clots on the meds reversed. You may want to double check. Best wishes to you and your husband
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ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sun Jul 31, 2016 9:12 pm

Thanks MUCH everyone for replying SO quickly! This is a GREAT community!

:D :D
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.
Top
jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Update on my husband Ron!

Postby jhocno197 » Sun Jul 31, 2016 9:30 pm

Praying!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
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