Postby Jack&KatiesMommy » Wed Jul 20, 2016 1:46 pm
Yes. I had this pretty bad. My oncologist said that it was not the Xelox. He said he could test me for rheumetoid arthritis....but I never had that done. I would wake up at night because the joints in my hands hurt so bad...I could barely move them in the morning. My hips and leg joints hurt so badly, I felt like I was 80 years old. I thought I did have rheumetoid arthritis. However, about 2 1/2 years after completing my Xelox regime (it is the Oxy that causes this not the Xeloda...because I am still on the Xeloda only)....all of the pain is completely gone. 100%. It gradually got better over the 2 1/2 years....but it took that long.
I searched on this board at the time of my pain and could find no other reference to this issue...so I figured that the oncologist was right. Thankfully he wasn't and it was not a permanant conditiion. I took nothing for the pain, other than ibuprofen when it was really bad.
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,