Postby DarknessEmbraced » Tue May 24, 2016 12:40 pm
I had my genetic counseling appointment via video conferencing. It will take a week for the medical release forms that I need to sign and send back. One of them is to give permission for the genetic testing center to have slides of my tumor. Another is for blood samples. The tumor testing will take a month and they will be looking if the tumor has characteristics of Lynch Syndrome. if it does then they will do DNA testing on my blood. If I do have Lynch Syndrome then they would recommend removing my ovaries and fallopian tubes. I am also going to sign release forms for them to have access to the pathology, surgical reports of my parathyroid surgeries for testing for Multiple Endocrine Neoplasia. That syndrome can make someone predisposed to developing various cancers.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!