I'm curious what is the highest CEA reading seen. Currently my CEA is at 3179 but I'm wondering how much higher it can go before my demise.
Thanks for the feedback
Lund5505 wrote:I'm just frustrated and looking for some sort of sign as to when this is going to take a downward turn. I'm having a lot more fatigue and had to start a fentanyl patch to help with the pain.
I feel like I'm just waiting to die and this totally SUCKS
Sorry for the rant
Lund5505 wrote:Thanks for the feedback. My CEA has always correlated very close with rising tumor volume. I was at 2600 at diagnosis then got down to 5 with folfox then back up to 1700 and down to 20 with folfiri. Since then we've tried xeloda and irinotecan and neither were doing any good so now I am just waiting and watching. My CEA came back yesterday at 3200 and it was 1200 a month ago. At this rate I'll be around 600 or more in a month. We know this is from mets covering approximately 80% of my liver.
I'm just frustrated and looking for some sort of sign as to when this is going to take a downward turn. I'm having a lot more fatigue and had to start a fentanyl patch to help with the pain.
I feel like I'm just waiting to die and this totally SUCKS
Sorry for the rant
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