Postby KElizabeth » Thu Feb 18, 2016 9:06 am
I think a home care hospice is a good choice, but do some interviews to make sure to find a provider that meets your needs. They will want to stike out non COL meds from her meds list right away, but you have a right to go over that before accepting. For instance my mother took methotrexate for RA pain management and foliate on her off days to manage it's effects. They wanted to cut it out of her regime, without understanding her reason for taking it. The same with her A-fib drug, but I said it eased her anxiety, because when she went into A-fib she went into a panic attack.
We waited too long for hospice, so it was pretty quick for us. Just a few months. In that time we talked about her childhood and her wishes for her family. We talked to old friends and checked off the boxes for long overdue conversations.
We had a few good rally days just before my mom passed and we said our goodbyes and prayed together.
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current