Diarrhea is back and more pain

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DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Diarrhea is back and more pain

Postby DarknessEmbraced » Mon Jan 25, 2016 1:00 pm

I'm going to go back to liquids for now. I was having toast, bananas, cream of wheat and pretzels. Today, tremendous pain and very painful diarrhea. I ended up taking a dilaudid. I don't know if I could have toradol because NSAIDS are bad for my high blood pressure. At least if I have diarrhea the colon prep on Wednesday should be easier with less in my colon to clean out. Dilaudid is helping.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Diarrhea is back and more pain

Postby peanut_8 » Mon Jan 25, 2016 2:56 pm

Have you been tested for a gluten intolerance or Celiac disease? Cream of wheat and pretzels could have aggravated it.
Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Mon Jan 25, 2016 3:00 pm

I've never been tested for celiac disease but wouldn't that show up in the colonoscopy or would that require a upper endoscopy? It seems like any food I eat aggravates my digestive system unfortunately even just liquids. Gluten has never bothered me in the past. I will mention to my surgeon when I see him for the colonoscopy follow up.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Diarrhea is back and more pain

Postby Steph20021 » Mon Jan 25, 2016 3:27 pm

You poor thing, you can't seem to catch a break! Sending hugs.

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Diarrhea is back and more pain

Postby peanut_8 » Mon Jan 25, 2016 4:02 pm

It sounds like there is no test for Celiac itself, butt they use a blood test to detect anti-bodies your body produces in response to gluten. So apparently they can't tell from just looking.

Here's a link, it looks like the symptoms are similar to your's DE.

http://www.niddk.nih.gov/health-informa ... #diagnosed

Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Mon Jan 25, 2016 4:14 pm

Thanks for the link peanut. I do have many of the symptoms. I also have the symptoms of ischemic colitis:

Pain, tenderness or cramping in your belly, which can occur suddenly or gradually
Bright red or maroon-colored blood in your stool or, at times, passage of blood alone without stool
A feeling of urgency to move your bowels
Diarrhea
Nausea

The only symptom I don't have right now is the bleeding. I hope I don't have gluten intolerance or celiac disease in addition to ischemic colitis because gluten free foods are more expensive. I will ask the surgeon about doing an endoscopy as well.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Diarrhea is back and more pain

Postby peanut_8 » Mon Jan 25, 2016 4:50 pm

That sounds like a good plan DE. Hope you feel better soon.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: Diarrhea is back and more pain

Postby Sams wife » Mon Jan 25, 2016 5:09 pm

Maybe you could get an allergy test. A friends kid had really bad belly problems & she ended up with weird allergies. Like eggs & tomatoes.
Maybe it would show a wheat allergy?
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Mon Jan 25, 2016 5:10 pm

I've had skin allergy testing. It has only shown my severe tree nut allergy and environmental allergies. I was tested for eggs and wasn't allergic.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Diarrhea is back and more pain

Postby Joannerogers » Mon Jan 25, 2016 6:35 pm

I'm sorry you are feeling bad, feel better soon.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Diarrhea is back and more pain

Postby teachpdx » Mon Jan 25, 2016 7:11 pm

I hope you get some relief and sorry that you're having such a tough time. I think the test for celiac's is a blood test. Hope you don't have to give up gluten on top of everything else. :?
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Diarrhea is back and more pain

Postby Lee » Mon Jan 25, 2016 7:22 pm

Good luck with your upcoming prep. I hope the Dr can find the cause for all your diarrhea and pain.

(((HUGS))) thinking of you.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

DarknessEmbraced
Posts: 3573
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Mon Jan 25, 2016 7:26 pm

The biopsy during the sigmoidoscopy showed ischemic colitis. The blood supply to my colon was reduced. The surgeon said it's like having a heart attack in your colon. He's doing the colonoscopy to see if there are more areas that have reduced blood supply. I won't find out the results the same day but will have a follow up appointment. They have to find the reason for my ischemic colitis. He mentioned surgery to remove the damaged areas as a possibility.

http://www.mayoclinic.org/diseases-cond ... n-20026677


Thanks for the hugs and the good luck with the prep.
Last edited by DarknessEmbraced on Tue Jan 26, 2016 11:29 am, edited 1 time in total.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: Diarrhea is back and more pain

Postby Sams wife » Tue Jan 26, 2016 12:19 am

Now that I read what you posted I think I mentioned that before. Oops. Haven't gotten to look up ischemic colitis yet but anything with colitis isn't any good. I hope it's just an easy fix for no blood supply. Hope the liquids are better on you. Good luck on Wednesday.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

User avatar
O Stoma Mia
Posts: 1603
Joined: Sat Jun 22, 2013 6:29 am

Re: Diarrhea is back and more pain

Postby O Stoma Mia » Tue Jan 26, 2016 8:32 am

In 2014, DarknessEmbraced wrote:After my colonoscopy my doctor said that he had found a mass in my colon... He told me that I have colon cancer. He showed me where it was on a diagram. I think he said that it was at the junction between the rectum and the sigmoid... My symptoms have been abdominal pain and cramping, bowel spasms, urinary and bowel urgency, full feeling in abdomen, maroon colored stool sometimes, sometimes just pass blood, fatigue, weakness(sometimes), abdominal tenderness on the lower left side...

According to the Mayo Clinic "ischemic colitis" article that you cited,
Any part of the colon can be affected, but ischemic colitis usually causes pain on the left side of the belly area (abdomen).

When you were first diagnosed in 2014, you said that one of your original symptoms was "tenderness on the lower left side". My question now would be: If you are diagnosed with ischemic colitis at this point in time, have you had this condition all along, even before your LAR surgery, or could this be the result of some kind of damage that might have occurred due to the LAR procedure itself? -- i.e., could something have gone wrong in the surgery to block off some important blood vessels in your left abdominal area?

Are you still having abdominal tenderness in the same place that you had it before your surgery in 2014?

In the past year, you have experienced quite a few different health problems. Do you have a medical team that is able to look at all of your health problems at the same time to see if there is a pattern? Some of your non-cancer chronic illnesses may be requiring medications that are incompatible with each other and which then have undesirable side effects on bowel control. In my opinion, you need to have a medical team of several different kinds of specialists that can sit down together and look at your whole medical history and see how the different conditions, medications, and treatments are interacting with each other -- including any self-medication using non-prescription, Over-The-Counter products.


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