Hello everyone,
Thought I'd pop back on here to perhaps give hope and encouragement to anyone who is new to dealing with CC.
I'm so happy to say I reached my 8 year cancerversary on January 3rd 2016....
I was diagnosed with stage 3 plus 2 lymph nodes, with the usual chemo to follow, I have to say I was so nervous about my future survival at that point mainly because around 5 years previously my Dad had had a CC. diagnoses ( stage 2 with no lymph nodes involved ) he sadly died just 2 years later.
I embarked on my prescribed treatment only to discover I was highly sensitive to Oxi & I also lacked the enzyme in my body to convert the Xeloda to 5fu rendering it highly toxic ....
Xeloda was discontinued immediately, and I limped my way through a mere 4 rounds of Oxi....
Extremely nervous at that point at the thought of no more chemo !!!
I was left with lasting chemo damage, then got diagnosed with Fybromyalgia and also discovered I have Lynch Syndrome ...
Fast forward to now & I have recently undergone a Laprascopic Hysterectomy + BSO, as a risk reducing measure for my LS, I still see my oncologist once yearly & I also get regular screening colonoscopies.
I am ecstatically happy to be lucky enough to still be here 8 yrs later after such a shaky start.
I hope this gives anyone of you worrying about their outcome some positivity & hope, I had a very bad experience with what turned out to be a comparatively tiny amount of treatment at the beginning of my journey but still made it through to be here to tell the tale
I really wish for a good outcome for you all, I think about you all the time and have never forgotten all the lovely folks on here back when I first joined the colonclub ....thank you all so much for giving me hope back then.
Much love Barbara x
Hoping you all stay safe in the current blizzards that are hitting your country right now, take care all x