Postby Deborah614 » Thu Jan 07, 2016 1:08 pm
I can't imagine being your age, with small children, going through treatment. I am just over 4 weeks out from 8 rounds of Folfox. I wanted to quit at 6 because of the side effects, but my onc wanted me to have 12.(YIKES!!) He stopped me at 8 (WHEW!!) because of the the neuropathy, although I needed 20 shots of neupogen for low WBC to get as far as I did. I had the cold sensitivity and also experienced esophageal spasms during infusion with the 5fu pump. They were excruciating and really, really, really made me want to quit. I'm very proud of myself for doing #8 and my onc seemed both surprised and pleased I made it that far, too. I read a post on here about using Acetyl-L-Cartinine to heal neuropathy. I am using it, and believe it's really working to ease the symptoms. If I knew how to link you the post on my new computer, I would, but if you search the topic "Finally--something that really seems to help with neuropathy!" by Ipas on 12/08/15 you'll find it. Read the comments, too, because there is additional info and links to the studies. Ajane posted in comments on 1/02/16 a "neuropathy cocktail" that I have been taking. I'm already walking less like a drunkard and not dropping dishes anymore. My heart goes out to you and to your little kiddos. My cancer year was a brutal beast on my body, but I'm already starting to rally around, and I'm a grandma of 10, already helping babysit my 8month old and 3yr old grandsons:) You'll get this behind you and wonder where you found the strength and character to overcome cancer, but believe in the fact that you have it in you. We are super heroes, after all.
dx 12/17/14
stage 2 rectal cancer T3N0M0
standard treatment 28 days radiation w/xeloda, surgery, 8 rounds Folfox
22 shots neupogen 32 days in hospital for infections
60 years old
mother of 6, grandmother of 10, wife of 1 for 35 years
Jeremiah 29:11
05/28/15 APR, Barbie butt, permanent colostomy
May 2016 Cat scans NED!
May 2016 mammogram
June 2016 invasive ductal carcinoma breast cancer left breast stage1
August3 '16 mastectomy with reconstruction, genetic screening scheduled