Bad News From Doc

[PEEJAY]

Found out today that chemotherapy is no longer working. The mets in my liver have grown significantly and moved onto the lymph nodes, pelvic area, and even some spots down around my stoma. It's weird because if I'm going down, I'm excited to get off chemo! Hoping to get a new life expectancy by Tuesday.

[midlifemom]

Peejay, sorry to hear your news. When I thought I was worse off than I was, I was also psyched about the no more chemo aspect. Best of luck with your appointment Tuesday.

[plastikos]

Peejay, sorry to hear this. Is getting another onc's opinion out of the question? There must be other options chemo or otherwise. Avastin? How about looking at clinical trials? At the very end if all else fails I would start trying those alternative therapies. There's always a chance one of them might work.

[NateA]

Love ya Peej, you know how to find me anytime you need somebody to talk to.

[Sams wife]

Damn. Just damn

[jhocno197]

[Steph20021]

This makes me so sad. Im sorry peejay. I hope they can give you a new chemo to try. Seems you have only just begun. Hug to you.

[ANDRETEXAS]

One day at a time ---- one fight at a time ---- hang in there ---- wishing you the best at your next appointment ! Andre

[chixter]

Luv ya PJ, thats all I can say. I'm here on the East coast but I'm in your corner. I think there comes a point in cancer treatment where the person is faced with difficult decisions, one of which is to seek out a new poison that may or may not work. 3 different chemo cocktails were given to Katie with no effect. When we were at the oncs office he brought up Stivarga which Katie had done some research on. She listened to him explain the horrible side effects of this drug and she asked him the probability of it working. He said in his opinion 5-10% chance of it being effective, and he recommended she try it. There were tears in my eyes as I listened to this exchange, in the face of all this she smiled that Katie smile at her doctor and said, "thanks but no thanks, but I think I'll pass on that". I was in awe of my daughter that day. I'm here for you any time you you may feel the need to talk about anything. Hand tight.


Greg

[Lydia666]

PJ, I want to say something but I don't know what. Big hug and wish you a good quality of life and perhaps a new treatment with renewed hope. xo

[Crystald]

PJ, I don't know what to say but my heart is crying out NO!

Maybe the doc's can suggest something. I hope so.

Stay strong.

[DarknessEmbraced]

I'm sorry to hear this Peejay!*hugs* Wishing you all the best!

[bitchslapped]

PJ...Hope you are up to searching the forum re: genome sequencing, tumor testing, blood biopsy etc. in prep for your Tues. appt. Don't see any KRAS or MSS in your sig. Lots of fun reading here.

viewtopic.php?f=1&t=49467&p=406752&hilit=clinical+trial+list#p406752

Some general helpful info on clinical trials here:

viewtopic.php?f=1&t=50424&p=386604&hilit=clinical+trial+list#p386604

Wish we had a "sticky" thread for some of these things, but we don't.
It's ok to challenge your doc in looking outside the box a little bit, afterall...

Best Wishes
BS

[Sams wife]

I knew someone would bring some good ideas. (BS)

[PEEJAY]

Wow, thanks for the outpour guys! I took a few days off to get my head around the news. All of this is just lovely to come back through and there are a ton of good ideas here for me to get looking into!