JENNJ wrote: The ONLY worry I have about the trial is the 12 weeks with no treatment at all. The 4 weeks until the biopsy shouldn't be a problem but the additional 8 weeks for the cells to grow is the issue. 3 months is a long time.
DH2Sleen wrote:JENNJ wrote: The ONLY worry I have about the trial is the 12 weeks with no treatment at all. The 4 weeks until the biopsy shouldn't be a problem but the additional 8 weeks for the cells to grow is the issue. 3 months is a long time.
Did they tell you he could not have chemo between the tumor removal surgery and the cell infusion? I don't think they require that. We talked at some length with the attending Dr. about whether Sleen should take capacitabine between visits and we decided not to, but it was up to Sleen. I think that they will let his onc put him back on chemo if he needs to be. Be sure to talk about it with them (both NIH and onc).
JENNJ wrote:...she told me that no chemo was allowed at all during the 12 week period
JENNJ wrote:They said they need to see at least 10% growth, even stable disease will not qualify.
JENNJ wrote:I spoke to a Linda Williams who I believe is a screening nurse and she told me that no chemo was allowed at all during the 12 week period.
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