My 27 yr old sister was diagnosed with colon cancer in 4/06, and had a right hemi colectomy, 10 lymph nodes removed, and her appendix removed. The Cancer, Thank God, was only stage 2 with no lymph nodes affected, so she did not need chemo or radiation. She was encouraged to undergo genetic testing. Long and short 5 out of 6 of our family members have tested positive for HNPCC MSh2 exon2 deletion. It has been a shocker...The genetic counselors have talked to us about hysterectomys and all of the other prevenative tests that we need to keep up with annually. My sister just had an appointment with an oncologist at a premier cancer center. He asked her if her surgeon knew she had HNPCC when she was operated on. She said no, so then he went on to say that he thought she should have had a total colectomy.... Even though her surgeon said she is cancer free... He is going to a tumor convention next week where he is going to discuss her case further....Has anyonebeen encouraged to have a hystrectomy and/or a total colectomy this young after having cancer and HNPCC?
Thank you