Postby jhocno197 » Tue May 12, 2015 10:58 am
Found out December 17 that DH had a tumor; Dec.18 hospitalized due to colon perforation; supposed to have surgery to remove parts of colon & bladder Dec. 22nd, but could not be done as too massive and more invasive than expected; chemo started end of January (26th?). 4 treatments Folfox, neuropathy was getting pretty bad, so was switched to FOLFIRI, Avastin added. Hubs is 44; we have 5 kids ages 19, 17, 10, 4, and 1. I was handling things ok at first, but these last couple of weeks I can't hold it together very well. Dr has not ever said anything like --number of months, just things like, "It's not good, but we want to fight it;" "I'm not going to bet against anyone;" and a surgeon said dh "won't be going back to work" when asked how long till he could return. Hubs acts like he's going to be healed over the next year. Is it better for him to keep his delusions? Feel like I'm slowly drowning...
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17