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Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia

Re: Really??!!??

Postby wwroam » Wed May 06, 2015 4:50 pm

So very sorry Bev.
Keep breathing and punching.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Really??!!??

Postby pollo65 » Wed May 06, 2015 5:09 pm

Pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
chemo break

Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Really??!!??

Postby Danieljt » Wed May 06, 2015 5:18 pm

That sucks! How cruel this disease best wishes for good news soon. You are the shining light on this forum. You give us all hope for a future cancer free!
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Really??!!??

Postby midlifemom » Wed May 06, 2015 5:31 pm

More best wishes from Nj for best results.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Really??!!??

Postby Delinda2 » Wed May 06, 2015 5:55 pm

No, no, it cannot, will not be! Breathe. Holding you close until this mess is cleared up. With so much love for you dear Bev. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Posts: 509
Joined: Sun Oct 01, 2006 10:46 am
Location: New York City

Re: Really??!!??

Postby JAZZToo » Wed May 06, 2015 5:56 pm


I hope it's not another cancer or any cancer at all! I certainly can empathize with your shock at what the scan showed. I too went through a sense of disbelief when 11 years after stage 3 colon cancer, and less than a year after an MRI a stage 4 pancreatic cancer with a met to the liver was revealed.
Try to stay calm as you await the PET scan as you and others on the board have often said , whatever it is it is, and you will formulate a plan of action to do whatever is needed. You are a very strong person, taking care of your husband's multitude of needs during his cancer recovery,after your own battle with colon cancer.
Wishing you well and swinging those chickens for a clean PET scan.

Lynch Syndrome
2014 Stage IV Pancreatic Cancer
2003 Stage III Colon Cancer
1995 Stage I Endometrial Cancer

Posts: 38
Joined: Thu Mar 05, 2015 11:27 pm

Re: Really??!!??

Postby jaycey60 » Wed May 06, 2015 6:00 pm

So sorry, Bev - that sucks so bad. Really hoping it's inflamed nodes or due a cheap CT machine they found in a back alley.

Bev G wrote:Hi Kids,

I was to have what was advertised to be my last "real" onc appointment and "last" CT scan today. My liver resection was 5 years and one month ago, and my onc told me a year ago he would declare me cured today. Uhhhh....not so much. My CT scan showed several large mediastinal masses. He doesn't think they are CRC mets, butt thinks it looks like I have a new primary cancer. He's going to be getting me in for a PET soon, and is referring me to the lung cancer specialist who will do a bronchoscopy very soon. So, I'm back on the cancer fast-track. I guess there's a very small change it's nothing other than inflamed notes, butt that's not too likely.

I'm sure more news will be to follow.


Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.

Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Really??!!??

Postby canadiandaughter » Wed May 06, 2015 6:24 pm

So sorry Bev that you are dealing with this bullshit. I just can't think of another word for it right now.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: Really??!!??

Postby jean60 » Wed May 06, 2015 6:40 pm

As someone else said, I really don't post anymore either butt NO. NO. Enough. Will be thinking of you!

Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

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Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Really??!!??

Postby elise » Wed May 06, 2015 6:42 pm

crud. simple and true. crud.


Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
Feb - NED
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
Ap, Oct - NED
Mar - NED

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Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Really??!!??

Postby ktwmn » Wed May 06, 2015 7:12 pm

I'm with everyone here...holding you close in my heart and hoping the news is better than anticipated...Breathe...know we are all here for and with you!
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

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Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: Really??!!??

Postby Voxx66 » Wed May 06, 2015 7:17 pm

DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
10/14 mets lung and peri
1/15 Folfiri

Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: Really??!!??

Postby Teddi » Wed May 06, 2015 7:37 pm

I sincerely hope it's NOT really. Even having to contemplate another cancer seems unfair. I hope your oncologist is wrong.

47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

Posts: 268
Joined: Mon Oct 14, 2013 3:54 pm
Location: Montréal, QC

Re: Really??!!??

Postby JJ2212 » Wed May 06, 2015 8:21 pm

I have no words, other than hoping your onc is wrong and the tests will be negative.

Rectal cancer dx 04/13 @ 42, MSS, KRAS positive
T3N2M1 (1 lung met)
5 weeks xeloda+radiation finished 07/13
APR 9/13 (permanent colostomy), 27/31 nodes positive :-(
12 rounds of FOLFOX 04/14
Lung met growth 11/14
26 cycles Regorafenib (Stivarga) from 11/15 to 01/17
New lung met and chest/neck lymph nodes 01/17
1 cycle Folfiri

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Really??!!??

Postby Frenchie's Wife » Wed May 06, 2015 8:32 pm

Wow, I did not expect that kind of
news from YOU Bev.

Shocks me a bit . Not totally surprised
but shocked and saddened .
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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