Vancouver Eve

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Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Vancouver Eve

Postby Joy » Thu Apr 23, 2015 6:52 pm

Does anyone know if Eve is doing o'k?

I have left a private message in her box and she hasn't picked it up.
We have been corresponding since day 1 and it is not like
her to not pick up her mail

Hope she is just off somewhere enjoying life :D
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Vancouver Eve

Postby CRguy » Fri Apr 24, 2015 12:44 pm

Bump up here Joy.
Eve posted in late March into the POG topic as she was being POG tested and I asked her get back to us with any news.
Otherwise I have not heard from her.

Always sending Best wishes and POSI +++< Vibes !
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Re: Vancouver Eve

Postby Joy » Sat Apr 25, 2015 2:09 pm

I really miss "talking" to Eve. We have supported each other from the get-go!
I am considered Colonrectal cancer free, but unfortunately I have other "issues".
3 years out after completion of chemo for Colonrectal I was diagnosed with Chronic Lymph leukemia
and MDS (bone marrow failure) anemia caused by chemo?????
I also have chronic kidney disease caused by Chemo???

This is not to say that I am not enjoying life...I go to Florida for the winter each year
and try to just ignore all the medical problems. Reality bites at this time of year
because I am back in Canada and doing the rounds of Specialists at the cancer centre.

I am currently not being treated ....Chronic Lymph leukemia is not treated immediately
as there is no cure and the first approach is Watch and Wait (watch and worry). I will
eventually have to go through Chemo the trick is to find something that will not do
more damage than good.

Anyhoo I digress.....just wondering if anyone has heard from Eve. I am concerned
about her!!!
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Vancouver Eve

Postby vancouver eve » Tue Apr 28, 2015 2:01 am

Hi Joy,
I am sorry that I did not responded to your e-mail as I have not been on the board lately. I am scheduled for surgery in the next few weeks and, frankly, I am scared. I will have an illiac node removed and it will be POG tested. The surgeon has given me some very good news; the surgery will take place with an intent of a cure, but the bad news is there are a few things that can go wrong and the surgery is 4 hours long. I am trying to calm myself down at this time, but I find it difficult.

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Vancouver Eve

Postby BrownBagger » Tue Apr 28, 2015 8:31 am

Thanks for checking in, Eve. I was concerned about you. I'll send you a PM once I collect my thoughts about your upcoming surgery. Out the door to get a scan myself, right now.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Vancouver Eve

Postby vancouver eve » Tue Apr 28, 2015 2:56 pm

Thanks CRguy for the posting. Brownbagger I wait for your e-mail. Jaynee where are you? It has been months since I have heard from you.

User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Vancouver Eve

Postby CRguy » Tue Apr 28, 2015 3:52 pm

Best wishes for the surgery Eve and REALLY hoping the POG testing will be a new bullet in the gun for you !!!!!
I am so happy you are in Vanc to be able to benefit from this !!!!
( PS: I emailed our Onc to thank him and congratulate the team on the POG success
…. BUTT he would not spill the beans on which drugs he had used )

Cheers !
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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