Up and down and up and fricken down. Damn this disease!! Dick has been having a very difficult time recently. We are trying to find some good time in each day but he is dealing with pain and side effects on a regular basis. Chemo days and the day after are obviously hard days and then for the next 12 days until the next chemo it is up and down. Whenever he is down with pain and/or side effects it seems like this is it, the beginning of the end. Then, he rebounds and like we did on Monday we get out on our boards together and enjoy the ocean. We soooooo appreciate these little pockets of good times and Dick constantly amazes me. I swear he is so incredibly strong physically and mentally. I tell him he doesn't have to be that strong if he doesn't feel like it.
Well his wonderful step brother paid for us to take 2 nights away from home and the care of our daughter with special needs in a luxury hotel in Waikiki. It is incredibly nice. Gorgeous view of Diamond Head and the ocean. When we checked in yesterday he was in pain. We got that under control and enjoyed a great evening of room service and fabulous views. This morning I went to yoga on the terrace and then we both went stand up paddling and Dick even caught two waves. After we each took long relaxing baths and then had lunch. I went for a massage and by the time I got back Dick was in level 7 pain.
I packed small bags, left the rest of our things in the luxury hotel room and drove to the ER. We think it has something to do with his right kidney. On the drive here I had to pull over so he could throw up. We have been in the ER for almost 2 hours. No doc yet but at least he has had some pain meds. So that's this f''n disease. Mixed feelings between being grateful that we had any time at all in a luxury hotel and then anger at being in the ER and my incredible husband being in pain.
OK, rant over.
Kathleen