My Scotty Boy has flown away ....

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Re: My Scotty Boy has flown away ....

Postby SMR » Wed May 28, 2014 8:54 pm

I'm so sorry...
If you have the desire, there is a colon cancer group on Facebook that is 100% private (no one can read the posts if they are not in the group.) there is a subgroup for those of us caregivers who have lost a loved one and I've found if helpful over the last two months since my husband passed. If you ever want to join the group, Pm Me and I can get you added. I think my Rick will be giving your Scott a warm welcome.....
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

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Re: My Scotty Boy has flown away ....

Postby Kathleen808 » Thu May 29, 2014 2:09 am


Thank you for sharing Scott's last days with us. It sounds as though the time was truly blessed. My prayers are with you and your family. I know you will miss your precious husband dearly. Peace.

DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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Facebook Username: Celeste Marie Comeau
Location: FL

Re: My Scotty Boy has flown away ....

Postby pfCml73183 » Thu May 29, 2014 7:11 pm

DeAnn, I have searched my heart and can not find any special words to say that will help you to feel better.
It is very sad you lost your husband as quickly as you did. I am sorry you had to experience that loss.
I am with you in spirit, Celeste
Wife and BF to Peter, 54
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

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Re: My Scotty Boy has flown away ....

Postby jens22 » Thu May 29, 2014 7:23 pm

WHile we have only been friends on the just truelly touched me with your story. Even though the journey was was long. You have angels all over watching you. You and your family are blessed. Prayers for strength as you raise your boys. It's going to be hard...but you will do it and you will do it well.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

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Re: My Scotty Boy has flown away ....

Postby deb1223 » Thu May 29, 2014 9:21 pm

DeAnn so sorry for your loss. May God continue to give you little miracles when you need them most.

52 Yr. old Female, DX July 2010
Stage IV CC, 21 mets to liver, 1 to lungs
12 Rounds Folfox
To date no surgeries
Enlarged spleen
Been on Avastin only since Mar. 2011

michelle c
Posts: 1898
Joined: Wed Dec 02, 2009 3:58 am

Re: My Scotty Boy has flown away ....

Postby michelle c » Thu May 29, 2014 10:01 pm

Dear DeAnn,

I am so heartfelt sympathy to you and your boys. Wishing you strength and peace in the coming days and weeks and always.

Thank you for sharing this with us. It must be a blessing that it was quick in the end and your dear Scott did not linger or suffer endlessly.

What a blessing it was that you crossed paths with that beautiful girl - God bless her. It sometimes amazes me the kindness and generosity of others.

Love and hugs to you and your boys from across the miles.

Michelle xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

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Re: My Scotty Boy has flown away ....

Postby vickitwo » Fri May 30, 2014 7:14 am

My heart goes out to you and your family.

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
radiation tx to L5 and hips
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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Joined: Wed Nov 23, 2011 10:46 pm

Re: My Scotty Boy has flown away ....

Postby hart2hart » Sat May 31, 2014 11:19 am

DeAnn -

We wanted to let you know how sorry we are for your loss of your dear,
loved (very much) hubby, Scott. What a beautiful picture you posted of the two of you DeAnn.

Many gentle hugs,

Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2020
Hai Pump/Port Removed - 1/2020

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Location: Atlanta, Georgia

Re: My Scotty Boy has flown away ....

Postby chrissyrice » Sat May 31, 2014 2:23 pm

I am so sorry for Scotty's passing and want to tell you how important it was to read your beautiful posting in tribute and sharing of your feelings.

Thank you so much for sharing your thoughts and love.

DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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Re: My Scotty Boy has flown away ....

Postby j'swife » Sat May 31, 2014 9:19 pm

Thinking of you all celebrating Scott together this weekend with love
DH 63 12/12 unresectable liver mets. 2/13 Ffx-Avstn fail. 4/13 HAI pump@MSK. 8/13 mets 50%;Resectn & LAR 10/13.NED! Folfiri & FUDR. reversal 4/14. 3 lvr spots 10/14. 5FU+FUDR. 5/15 resectn/IRE . 7/15 lung 'thingy' 9/15. FUDR, Xeloda. HFS. 2/16 RFA of lung met. FUDR/IRI. 4/16 2 lung 1pelv spots. XEL, stop FUDR. 6/16 RFA 2of 3 mets. XEL. D.10/3/2016 of infection post surgery to remove aortic clots (rare Budd-Chiari syndrome) in local hospital. HAI success! then blindsided...

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Joined: Wed Jun 01, 2011 12:53 pm

Re: My Scotty Boy has flown away ....

Postby so-scared » Wed Jun 11, 2014 5:03 pm

I want to thank you all for your kind words. I buried the love of my life nine days ago now. It is still unreal to me. I am really struggling here. The kids are holding up pretty good so far but I was warned that it will hit sooner or later for them too. It is just so hard to imagine my life without Scott. I saw a grief counselor who suggested a grief support group. I am also going to check out some that have been suggested by some of you.

Scott's service was beautiful. My youngest child and I made a video of our tribute to him and two of the other kids were strong enough to actually get up and address a packed church. I was so proud of all of them. We must have done something right because several people have asked if I could plan their funerals. Some even said it felt more like a wedding than a funeral so I guess that is also a compliment. The burial was very tough on me but it was also a beautiful thing. It was kind of invite only as I wanted a time for only those I was closest to to share the moment with. We had about 60 people there and did a balloon release. The balloons were red, white, green, and yellow for the Badgers and the Packers. Everyone attached a message. It was really neat to see. I also did a dove release. I let one go which was symbolic of me letting Scott go. That one dove was followed by three others that represented the father, son, and the holy ghost who would guide him home. The crowd gasped ... it was breathtakingly beautiful!

At this point I cry a lot. I told my one son that I must have the biggest tear ducts in history. He suggested that maybe we contact the Guiness Book of World Records to see. As reality sets in, the pain amplifies. I have an extensive vocabulary and all I can come up with to describe all of this is ... this really sucks and I am so very sad. That pretty much sums it up.

I continue to check in on you guys and wish you all the best!

DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
HAI pump 12/12
Had to leave 5/23/14

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Re: My Scotty Boy has flown away ....

Postby singingholly » Thu Jun 12, 2014 4:11 am

How I wish I could be of some help... But mourning is beyond my possibility. Too sacred, too enormous.
But I want to tell you I'm here, with you, reading your words and feeling sorrow and sympathy...
A warm hug.
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: My Scotty Boy has flown away ....

Postby Cured » Fri Jun 13, 2014 8:40 am

DeAnn, What a great love you shared. You brought tears to my eyes.
May God continue to bring comfort to you any your family.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
CEA to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7,2.2,5.7,5.3
12 rds Folfiri
Avastin evy 3 wks
Seizure Anti-seiz meds work-no driving for 6 mo
4-20PET: Lung spots=Chemo

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Facebook Username: debbie jett
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Re: My Scotty Boy has flown away ....

Postby live2jett » Fri Jun 13, 2014 4:18 pm

Tears..thank you for sharing your soul friend...My love and prayers are surrounding your family. What a gift you gave him as he left this world...all the LOVE. Life will never be the same...just know that the LOVE never dies. xoxo
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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Joined: Sun Mar 23, 2014 11:13 am

Re: My Scotty Boy has flown away ....

Postby rkolo » Sat Jun 28, 2014 2:41 am

Tears reading this, so sorry for your loss
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven

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