Postby skypup » Thu May 15, 2014 8:31 pm
Hey, Jeanette, sorry you are having nose problems. Are you on Avastin now? When I was, during the winter with low humidity, I had to get some stuff (I got a brand called Ayr) to moisten my nose. It helped quite a bit. You are a trooper and I'm sorry you are having such issues. It is hard to do this without a partner, for sure. Yet there is a part of me that thinks it might be easier in some ways, too. I do what I want when I want, and don't have to keep up a strong front for someone else's sake. Like all things, I guess it's a mixed bag to live alone...
Voxx, thank you for your input. Most of the time I am like you, I want alone time mostly for the bad days. It's just that I wish my brothers understood this is serious and we won't have that much more time together. But I do remember when the timeline seemed to stretch to the horizon, though, so I understand but do not like that we are in different places. On the good front, one of my SILs did call today, so am feeling less alone.
Re: my pain, that I've talked a lot about. I drew a short straw in that my mets are pressing on some nerves, but it isn't the pain that comes with bulky tumors and advanced disease, so while it's a pain (literally) to deal with, I am not kicking off anytime soon. Don't want to give the wrong impression. I went to a neurologist today (because I sure need yet one more doc on my team); she and I talked about nerve blocks and RFA to help block the pain. Sounds promising and I am going to see about having a nerve block when I go back to MDA in a month. I like this option a LOT more than taking more pain meds.
Jeanette, about "should I do this if time is limited"... Last year I had a root canal and a crown rather than pulling a molar, but had to think about it a lot. It's not like I have tons of money. Just recently, I have started to redo my townhouse. It was stuck in the 80s with mauve carpet throughout, flying artichoke wallpaper in the kitchen, and yucky floral wallpaper in the bathroom. All that is gone and I have sooting blues on the walls. The new flooring will be in over the next two weeks. I have taken the chance to only put things back on the shelves that I REALLY want to keep. This is hard because I am doing it for two reasons. The first is that I really like minimal clutter. The second is that there is a part of me that is readying everything for when I pass. I already have super-simplified my finances, now am culling stuff. It feels good and bad at the same time. But I know the end result is that I will get to live in beauty for the rest of my time here. I used to travel so much, spending time in nature was my big thing, that what my home was like didn't matter that much. Just a place to stay.
Hugs to all!