Postby lohidoc » Wed Apr 30, 2014 4:54 pm
I like the guy and wish him well. But really?? It took them this long to decide that his pancreatic cancer was of the neuroendocrine type (same as Steve Jobs). And meanwhile the tumour has grown from walnut to football size? That is disgraceful.
It seems to me that at the time of the initial diagnosis they just shrugged their shoulders and said: "You have pancreatic cancer, you will be dead soon." And then when, surprise, he did not die soon enough they took another look and did the biopsy they should have done in the first place. And now he is faced with a far more difficult surgery than would have been the case had the correct diagnosis been made sooner.
This type of therapeutic nihilism is so common, more so I think in Europe. You have cancer, you will die. End of story. This is why there is no sense of urgency in the cancer industry, why, at some fundamental level they just don't care enough.
Yet another reason why, as patients, we need to be in control, informed, and push for what needs to be done. Nobody cares about us as much as we do ourselves.
I wish the guy well. This an appalling story.
PS And you know what? I bet no one told him.
"Half of what I know is wrong. I don't know which half."
Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com