This is getting boring...

[Jon Olis]

http://ridingawayfromcancer.wordpress.c ... years-ago/

[stu]

Happy New Year to you to. Enjoy your celebrations
Stu

[Cat]

Thanks so much for posting this...I found it inspirational, as I was stage three when I was diagnosed in 2010. Congrats on nine years!
Wishing you and your family all the best, and continued good health to you!
Cat

[lorrainem]

Jon, I work hard each day to remember the day's of treatment; it inspires me to get up and DO. Though I don't deal with the physical feelings of that time too often, your first paragraph struck a chord. Thank you for sharing, and let's all remember never to waste a moment, a day or anytime we feel the strength to do something we want.
Happy New Year to you, those babies and to all you love.

[CRguy]

Jon,
Please forgive me if I misread your blogpost ... I saw nothing boring.
I am on here 4-5 times per day, since Feb 2008, and have seen nothing boring about being a 9.5 year survivor of Stage IIIC CRC.

I am currently a 7 year survivor of Stage IV A CRC .... let me know if you find being NED ...... "boring" ? ... I sure as F*^& do NOT !
I can supply you with a list of about 20-30 other members here who would agree with me .... ?

I find every minute invigorating during my last NED Journey ...... Maybe I have missed your point ... ???????

I was just spending time going through posts about dear friends here, who will not have the option of being bored with being NED ......
Just me ?

I cannot conceive how there could be anything boring about being alive, with your family and looking forward to another year alive .....
JUST ME ??????????????

I guess so, but please let me know if I misinterpreted your post heading .... ?????

What exactly is boring about being alive to post on this forum, with your life intact and being with your loved ones this Holiday Season ..... ???????

Again, please forgive me if I have misconstrued the message of your post :

Survival, at any stage, with any challenge Jon, .........

Is anything BUTT boring ..........

just me

YMMV
CRguy

[Bev G]

CR, I wasn't going to chime in on this one, but I mis-read it in the same way. I found it incredibly offensive, very awful timing and in general very insensitive, so I am just assuming with so much apparently so wrong about it, I must have misinterpreted it. How many of our beloveds on here would give anything, anything at all, to have this sort of "boredom" to have to struggle to cope with?

I so hope I misunderstood. Who could ever stand among us in our group, in our family here, and not be thankful for every millisecond of a disease-free existence that they appear to have?

[kpjpmom]

I am never bored when I wake up each day . I am thankful that I am alive to enjoy one more day with my loved ones. I dread hearing the words once again "well it is back" . I have fought this disease for almost three years and am thankful to be around. I am anxious for weeks before each scan that I face. I worry that a new pain may mean it is back! I am glad you are still around enjoying life and being "bored". I pray you never face another day of chemotherapy/radiation/sickness/surgery.

Here is to more "boring" days for you and yours!

[CRguy]

CR, I wasn't going to chime in on this one, but I mis-read it in the same way.

I found it incredibly offensive,

very awful timing

and in general very insensitive,

Bev,
Please don't even get me started ..... please my friend

those of us here, who really know wazzup will understand
the rest I guess don't, won't or can't know ...
and may never really understand .....
BUTT these folks whom I hold dear to my heart may well understand,
and I had to stop after 4 pages of reviews because I also remember .....
and I could not search any more

... and I am ANYTHING BUTT bored, Jon
I am gutted by the tragedy and the loss

gutted


Jeff
bradyr
justsing
Starbuck30
joeyooser
RixinPhx
jmarie
Terry
Gaelen
lepperl
thostie
Livelife
Yellowbird
KarMel
midnight_engineer
crazymotherof8
Westie68
Vickilg
gep
JulieG
JerseyGirl
tawni's mom
DaniMags
etc.
etc.
etc...........

My heartfelt wish is that you named friends, and so many others we have lost, could feel the boredom of still being alive ...........

maybe just ME ... ?
YMMV

Bev, don't effing get me started,
please.

Harmony and Peace to those who really understand.

My sincere condolences to those,
who may have no idea.

I hope your "day" never comes, but please don't be bored while you are still here and alive .......

CRguy

[Bev G]

CR, seems to me, OUR mileage, yours and mine, and that of many others here, never, ever varies. Your list made me need to throw-up. And now Kathryn. The heartbreaks never end.

Love you,

Bev

[CRguy]

I just had to stop looking for friends lost, Bev .....
and it wasn't boredom

I was gutted

[jjlist]

not sure I understand what is boring either? This sounds insensitive to me. I am happy that you have survived, but sad for the ones that haven't.

[SMR]

I was confused as well, and hoping I misunderstood. Especially as I read this post just after my husband confessed to me that he plans to stop treatment...

[Nanette]

To see what others have been through and survived this damn disease, is a gift. To see the others who have been through hell and left this world, my heart breaks for them and their families. I thank God every day my husband is here on earth and boredom definitely does not come to mind. As we all know, being NED for even 20 years, does not guarantee anyone from having a relapse. You pray it never happens to you or a loved one.

CRguy - I remember most of those people on that list and I think of them often. Recently, a friend of mine's husband passed away unexpectedly due to complications of rectal cancer surgery. Bob was "cured" of cancer (no cancer when they went in), but shit hit the fan after he went home...had a blockage, went septic, etc. It started with f'n cancer and he is no longer here. My father died three days after Bob died...all of this is too raw for me right now. Life is never boring as far as I'm concerned, especially with what we've all been through.

I am praying for peace for Kathryn...my heart breaks for her and her family...

Wishing you all a peaceful New Year...
-Nanette

[lorrainem]

I think the title of his post here may have been misleading, and yes, insensitive. The blog post however was quite retrospective and appreciative for the nine years Jon has been given. CRs list is too long and brought back memories of days gone by and people lost. I'm happy for Jon and those that remain here and do wish them moments/days/years of happiness that take away the ugliness of this freaking disease. We do push each other through this no matter stage, status, individual diagnosis.
Jon's day to day life may be mundane like those of us NED, but we're here because we care.
Sending 2014 love.
Lorraine

[hummingbird3]

Certainly I must have misunderstood as well ..

There are no words which can explain the gratitude I feel for my medical team to have given me the gift of a few more years on this beautiful earth to watch my family grow.

Not one day have I taken for granted. Having spent the last few years in active tx, surgery, recouping, chemo, recouping more surgery more chemo, I certainly have not found "boring".
The small amount of time I have been NED has been a gift. Not always easy to manage, which brings us all here for support I suppose, but still not boring.

I actually skipped over this thread several times as I try very hard to keep every piece of "caused" negativity out of my life. It is damaging and it just makes me plain angry that anyone would want to take away my happy. It has taken me a long time to become happy. We all live in a scary, scary place on this forum, be us scared for ourselves, our family members, friends (both virtual and physical), or loved ones .... that is not boring.

The night sky is not boring, nor the early morning sunrise. The beautiful owl watching and protecting his territory from the tree line is not boring. I did not find the bustling people outside my hospital room window boring. I do not find the music I listen to boring or the mint cocoa I shared with my dear husband whom has followed me in this journey. (instead of finding something less "boring" to do) .. I am blessed, even sick and weak, I am blessed.

I find myself feeling very sorry for anyone who feels bored ... maybe if there is boredom at this point of your journey it is time to give back to those who need lifting up.

Just sayin.

Have the very best of a New Year ... happy and healthy ..