Kathryn in MN wrote:I won't do radiation to my spinal mets again. I'm sticking with the STAR Ablation from here on out. I'm going to use it for any bone mets that I can. I've done both radiation and RFA. There are lifetime limits to radiation, plus it causes severe fatigue and causes nausea and vomiting for me (vomiting controlled by Zofran but I still deal with the nausea). RFA is so much less dangerous to the body and is just a one day out patient procedure. I'm not spending day after day going to radiation again if I can avoid it. (Been through two months of daily radiation in 2011 and two weeks of daily radiation in 2012.)
Fentanyl patches helped keep my pain level better, but it still wasn't great until doing RFA.
http://dfineinc.com/
abuttigi wrote:So sorry to hear about the mets, Karin.
My dad's bone mets were in his humerous (no idea how that's spelled), but we used icy-hot patches to hold him over until the radiation. That and morphine. He also liked the hot water bottle a lot, that seemed to help.
Sorry I don't have any more tips, but I'm thinking and praying for you.
Hugs,
Angie
KarMel wrote:abuttigi wrote:So sorry to hear about the mets, Karin.
My dad's bone mets were in his humerous (no idea how that's spelled), but we used icy-hot patches to hold him over until the radiation. That and morphine. He also liked the hot water bottle a lot, that seemed to help.
Sorry I don't have any more tips, but I'm thinking and praying for you.
Hugs,
Angie
Angie... You and your dad and I apparently are on the same vibe...I use liquid morphine, icy-hot, and a corn hot pad.... Corn kernels sewn into a cotton bag which can be heated up in the nocrowave and is a great heatIng pad.
Hope all,is going well. Classes good?morvstill getting thru basics?
Take care,bayou and your mom your remain in my prayers... And your sister too!
Karin
Rob in PA wrote:Karin,
Sorry to hear about your spinal mets. Your symptoms sound like a problem I've been having recently. My arms are sore from shoulder blade down to elbow...but it comes and goes. Sometimes it will be sore for days and then some times I'll go for days and it won't bother me.
Once bone mets start, does the pain ever subside and come back intermittently? Or is it a constant pain/soreness once it gets established? Anyone else with mets please chime in as well please. I have PET/Ct scan in four weeks. Thanks Karin, and good luck with the radiation. Hope you handle it well.
Rob
P.S. One thing I noticed is that if I arch my back (with chest pushed out) and push my shoulders back, I can feel my upper spine cracking kind of like when I used to go to chiropractor. Once I do that, the pain subsides for a while. Could this just be joint damage from years of radiation? This is driving me crazy and Karin's post hit home with me.
Thanks.
KarMel wrote:Kathryn in MN wrote:I won't do radiation to my spinal mets again. I'm sticking with the STAR Ablation from here on out. I'm going to use it for any bone mets that I can. I've done both radiation and RFA. There are lifetime limits to radiation, plus it causes severe fatigue and causes nausea and vomiting for me (vomiting controlled by Zofran but I still deal with the nausea). RFA is so much less dangerous to the body and is just a one day out patient procedure. I'm not spending day after day going to radiation again if I can avoid it. (Been through two months of daily radiation in 2011 and two weeks of daily radiation in 2012.)
Fentanyl patches helped keep my pain level better, but it still wasn't great until doing RFA.
http://dfineinc.com/
Can Yu explain difference if it is not too much trouble? If the RFA is not available locally, I don't feel like traveling. The radiation center is literally two blocks from my home. Very convenient, except for taking to weeks.
Thanks,
Karin
Rob in PA wrote:Karin,
Sorry to hear about your spinal mets. Your symptoms sound like a problem I've been having recently. My arms are sore from shoulder blade down to elbow...but it comes and goes. Sometimes it will be sore for days and then some times I'll go for days and it won't bother me.
Once bone mets start, does the pain ever subside and come back intermittently? Or is it a constant pain/soreness once it gets established? Anyone else with mets please chime in as well please. I have PET/Ct scan in four weeks. Thanks Karin, and good luck with the radiation. Hope you handle it well.
Rob
P.S. One thing I noticed is that if I arch my back (with chest pushed out) and push my shoulders back, I can feel my upper spine cracking kind of like when I used to go to chiropractor. Once I do that, the pain subsides for a while. Could this just be joint damage from years of radiation? This is driving me crazy and Karin's post hit home with me.
Thanks.
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