For those who have NOT had recurrance whatever the stage

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: For those who have NOT had recurrance whatever the stage

Postby very worried husband » Wed Jan 02, 2013 10:56 am

We will be celebrating 2 years NED for my wife who was diagnosed IIIB Colon on 28th January 2011@ the age of 25. She had to do blood work on the 9th of January, and We are strongly hoping that she will still be NED. We bought our dream home and will be moving in 3rd Week of January :mrgreen: ....

God Is Great...
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

User avatar
Aughhhh
Posts: 221
Joined: Sat Oct 27, 2007 12:35 pm
Location: Portland, Oregon

Re: For those who have NOT had recurrance whatever the stage

Postby Aughhhh » Wed Jan 02, 2013 12:43 pm

I was diagnosed in August 2003 with Stage 2A sigmoid colon cancer. This year will be 10 years NED! I had surgery and 8 months of chemo- 5fu and Leukovorin. I still get yearly bloodwork and then colonoscopy's every 2 years. So far, so good.
Pam :D
Stage IIA (T-3,N-0,M-0), sigmoid colon cancer, Diagnosed age 43 on 8/19/03, sigmoid colectomy on 8/30/03, finished 22 rounds of 5-FU & Leukovorin on 6/8/2004. Currently NED!

Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Re: For those who have NOT had recurrance whatever the stage

Postby Joy » Wed Jan 02, 2013 1:03 pm

hI.....Still see my oncologist every 6 months for CT scans and CEA. "Things" in my lungs and liver since day 1. Oncologist is being
very pro-active (thank goodness) and doing careful monitoring. Things have not been all "sunshine" I now have CLL (chronic lymph leukemia)
MDS (bone marrow- anemia) and chronic kidney disease. 3 surgeries for skin cancer, squamous cell and bassal cell.

My CLL is watch and wait....they do not do chemo until it is absolutely necessary....a very hard concept to get around
when you are told you have cancer...quite the mind mender :D

Hey...this isn't all doom and gloom....I'm still here....I feel fine....I go to Florida for the winter....life is good :D
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

Peabody5422
Posts: 334
Joined: Fri Dec 09, 2011 10:21 am
Facebook Username: debbie.whitaker

Re: For those who have NOT had recurrance whatever the stage

Postby Peabody5422 » Wed Jan 02, 2013 3:32 pm

DX: T1N1c MX rectal cancer on 11/2212. All scans and test are clear. Cea is low. NED. Return every 3 months to docs. :D
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: For those who have NOT had recurrance whatever the stage

Postby andy21 » Wed Jan 02, 2013 11:50 pm

Herman Cain is a prime Example of Stage IV and no recurrence: Don't know if he ever came to this board.
http://www.rollingstone.com/politics/bl ... g-20111012
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

Annb
Posts: 79
Joined: Mon Sep 08, 2008 8:29 pm

Re: For those who have NOT had recurrance whatever the stage

Postby Annb » Thu Jan 03, 2013 2:03 am

Still NED. Will be five years in the spring.

Best to all,
Ann
Annb
3/06 DCIS breast cancer
3/08 Dx CC at age 52
Stage IV (or was it IIB?...that is the question), met to right ovary, 0/16 nodes.
Right hemi, hysterectomy.
FOLFOX 5/28/08 until 11/12/08.
Married, 3 children 29, 27, 22
NED

User avatar
MonaL
Posts: 477
Joined: Sun Feb 15, 2009 2:42 am

Re: For those who have NOT had recurrance whatever the stage

Postby MonaL » Thu Jan 03, 2013 10:41 pm

Dad has been NED since 5/2009, knock wood.

I come back and check in and send healing thoughts while I lurk, since I don't have too much to post that is helpful. I remind myself that things may change instant, and not to take this remission for granted.
Dad, stage IV CC, mets to liver, 2007-2008
surgery, Xelox, and IP-6
NED summer 2009
surveillance stopped summer 2014, due to age
died 1/2018, from Parkinson's (triggered by one of his cancer surgeries and/or chemo)

Augustine
Posts: 41
Joined: Wed Aug 31, 2011 8:19 am

Re: For those who have NOT had recurrance whatever the stage

Postby Augustine » Fri Jan 04, 2013 1:45 am

I was diagonised on august 2011 and so far NED.

Augustine
25/7/2011:conoloscopy/CT scan
8/8/2011:Right hemicolectomy
T3 subserosal fats, N 0/34, M0
moderately diff adeno
10/2011: CT&MRI,small lesion in liver
12/2011: PET, no lesion detected
07/2012: CT scan clear
08/2013: CT scan clear

User avatar
barbara jayne
Posts: 759
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: For those who have NOT had recurrance whatever the stage

Postby barbara jayne » Fri Jan 04, 2013 5:56 am

5 years NED from :3/1/2008 to yesterday :)

Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

jjlist
Posts: 654
Joined: Fri Jan 21, 2011 11:56 pm

Re: For those who have NOT had recurrance whatever the stage

Postby jjlist » Fri Jan 04, 2013 7:41 am

currently i am NED. i still come to the board regularly, I dont post nearly as much. I have learned a lot of things i never wanted to learn. i dont have as many concerns or questions as i used to. I add my 2 cents in here when i think i can help.
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

wifenurse
Posts: 164
Joined: Tue Feb 01, 2011 4:05 pm

Re: For those who have NOT had recurrance whatever the stage

Postby wifenurse » Fri Jan 04, 2013 11:05 am

My DH is just over 3 years from diagnosis. Had colon and liver resection in February 2010 so almost 3 years out from surgery now. He had a single met in the liver and 3 of 15 lymph nodes positive (3 others with macroscopic cancer, not called positive - probably downstaged with preop radiation and chemo). No evidence of cancer since his surgery. Post surgery he had 12 chemo treatments - Folfox + Avastin. Had to stop Oxi after # 10 due to severe neuropathy. CT scan in December was good. CEA and LFT's best they have been since surgery at his appointment in December. All is good on our homefront!
Christy
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 6 guests