Postby lepperl » Tue Nov 13, 2012 9:30 am
I am in so much pain right now I am wrighting to try and get my mind off of it. This low pelvic pain began last week when I thought I had a UTI. It has progressivly been getting worse and I was just about to the ER point when yesterday it resolved suddenly. I had been popping vicodin like they were tic tacs but yesterday I needed no pain medication at all. Now at 6am today it is back with a vengence. I took two vicodin and I can actually stand up now but the pain is still there. I have an 11am appointment with the oncologist but I have a bad feeling he is just going to send me over to the ER.
On a second note, I spent all weekend fine tuning a letter to the hopital administration and the oncology group about my horrible appt with the clinic on friday. I carefully went through every screw up thats happened over the past 15 months. I tried to be really diplomatic and highlighted good experiences as well as bad. I showed up at the office yesterday to go over all of it with the manager. I managed to stay calm as I explained the situation to her. I did break out into tears when I stated that I sat there quietly, putting up with that jerks poor treatment of me, only because I was desperatly clinging to the hope he may have an option for me. As a matter of fact, when I look over the mishaps of the last 15 months I can hardly believe the crap I have taken. Of course she was appauled. I explained my only goal was to remidy this situation. I don't really want to have to find another oncologist. I will be seeking other opinions but in the meantime I do not want any delay in treatment. I even told her if she could remidy the situation I most likely would never even mail the letter to the CEO and Director of Nursing at the hospital. I also made sure to tell her not to mistake my calmness for not being mad. I am very angry. But I figured if I went in there screaming and yelling I would get noware. Now today I get to see the Doctor after I am sure he has by now read over my 4 page rant. This should be interesting.
Lori
Last edited by
lepperl on Tue Nov 13, 2012 2:04 pm, edited 1 time in total.
8/11CRC Stage 4 Nodes KRAS+ Signet Cells
10/11xelox
irinotecan
Folfiri,avastin
10/12 xeloda,avastin
"It will be said that she stood in the storm, and when the wind did not blow her way, and surely it had not, she ajusted her sails" Liz Edwards