Postby gracie » Mon Feb 20, 2012 9:28 am
I never did get too bad of burns, and Aqua 4 really helped. It seemed my first 2 weeks was making me completely well? Stools were very normal, but I found out this is common for some.
My biggest problem had to do with the 6 8oz glasses I was to drink before radiation. (This was to keep by bladder out of the way. On the x-ray table when I was positioned on a hard support object 'also' pressed directly against the bladder to also help keep it out of the radiation's way.
I did so good for about 3 weeks and then the problems Hit, with explosive vengeance and 'NO' warning.
I had drank my water as usual and by the time I got there my bladder was full as it was suppose to be.
Fatigue was also setting in. I was headed for treatment (30 miles away) About 1/2 way there explosive diarrhea hit me, and of course I also lost all that bladder water.
I came home and called them to explain. (That is when I found out they really like to keep all the treatments.) I did have Lomotil and was told to take 2 or 3 and start with the
water again and come in for treatment in 3 to 4 hours.
The first day worked?
Then right away I could hold no water and the diarrhea was worse even with the Lomotil?
Problems and they said they had to 'Rest me' (I thought this 'rest' would be about a week or 2.) Dehydrated now they hospitalized me, and urine spasm medicine. The rest was two days!
The medicine worked well, except the stool was so hard to control.
I did laugh when in came about 4 volunteers with 6 large glasses of water and all ready to take me to radiation? WOW! Finally a nurse told them the water would need at least an hour to fill my bladder. My fear of having diarrhea on the x-ray table was immense.
They were also adamant about my bladder being full and pushed out of the way.
Four days later it all happened again. I was sick and so fatigued.
I demanded everything 'Stop' "No one can live like this"
OK, they said it was my decision to stop, but don't think you will be all better as the fatigue and other problems would still last 2 to 3 months. "You only have 5 more treatments and we will really try to help you!
These problems of NO control is so humiliating, and the common healthy person never imagine what all happens or can happen to us.
They don't understand the razor blades, other burns, and terrible side effects from these treatments.
I stayed fatigued for about 3 months and the Surgeon would not do the surgery until I was more built up.
I am even a Nurse and took care of Cancer patients (on Hospice) so I did not fathom the side effects they had been through.
Then it is never ending with tests every few months and worries of recurrences.
In the words of all of us 'Cancer Sucks'
gracie
rectal cancer DX Sept 9th of 09 (stage 3)
chemo/rads 6weeks starting Nov 09
Surgery April 13 2010
chemo/ 5FU and Oxi starting 6 sessions (developed blood clots, heart and breathing problems)
suppliments with Naturepath Dr 2010