We just posted this message on Jessica's facebook, and I thought I would extend the invitation to all Jessi's friends on the colon club that are not on facebook:
"Jessica's family would like to put a book of remembrance together for Lilliana. We want her to know her wonderful mother and would appreciate your help! Please message Jennifer Tong with any memories, funny stories, thoughts or pictures of Jessi that you would like to share with Lilli. Thank you!"
I thought that some of you may have conversations/posts with Jessi that you might like to share with Lilli. For those not on facebook, please message me...I am now registered on the colon club as "jmariesmom".
Thank you so much...love and blessings to all!
Sherri
For Lilliana
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jmarie
- Posts: 2230
- Joined: Sun Jul 19, 2009 3:33 pm
- Facebook Username: Jessica Ramos Smith
- Location: Jacksonville, FL
- Contact:
For Lilliana
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"
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Surroundedbylove
- Posts: 3126
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
Re: For Lilliana
What a wonderful, wonderful memory to create for Lilliana
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
-
Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: For Lilliana
Beautiful. I will send in a message. I miss your beautiful daughter and her special spirit. I keep your family in my prayers.
Aloha,
Kathleen
Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
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SkiFletch
- Posts: 6361
- Joined: Mon Dec 07, 2009 3:39 pm
- Facebook Username: Michael Fletcher
- Location: Buffalo, NY
Re: For Lilliana
That's a great idea Sherri, a wonderful thing for LIlli to have
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
Re: For Lilliana
This is precious. What a great idea! Even though I'm sure words and pictures can't come close to meeting your wonderful daughter, I hope you get many replies that reflect sweet Jessica and make Lilliana proud to be her daughter.
I hope you are doing well!
I hope you are doing well!
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven
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Surroundedbylove
- Posts: 3126
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
Re: For Lilliana
Sherri- your message box may be full and you may have to clear it out so that others can be received. Just an FYI. 
Here is one of my favorite posts of Jessica's - it shows her indomitable spirit as well as an ability to find humor in a tough situation. I loved this spirit and it is a wonderful excample to Lilli.
viewtopic.php?f=1&t=16798
SBL
Here is one of my favorite posts of Jessica's - it shows her indomitable spirit as well as an ability to find humor in a tough situation. I loved this spirit and it is a wonderful excample to Lilli.
viewtopic.php?f=1&t=16798
SBL
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
-
Nanette
- Posts: 1323
- Joined: Sat Jan 31, 2009 11:15 am
- Facebook Username: Nanette Pepperday-Derry
- Location: Buffalo, NY
Re: For Lilliana
Such a beautiful idea, Sherri. I will be happy to send in a message. We miss sweet Jess and God bless Lilli.
You and your family are in my prayers...
-Nanette
You and your family are in my prayers...
-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!
Re: For Lilliana
Hi Sherri
Jess is sorely missed.
Jess is sorely missed.
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!
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