I'm trying to understand Lynch Syndrome. I've seen it mentioned on the board a few times. My understanding is that it is a genetic indicator of a person's potential to develop CC. My husband was dx at 51. At that time we didn't think there was any history of CC in his family; however, we are finding out that there just might be. His dad had "stomach problems" but no one thinks it was cancer. They remember it being a hiatal hernia for which he had surgery. He died years later from lung cancer w/ met to his brain. My sister-in-law had the whipple procedure done 2 years ago as a preventative to pancreatic cancer. She had some cysts on her pancreas that had the potential to turn cancerous. She was told that there was a great risk that they would eventually. In the meantime we've learned that two of my father-in-law's siblings suffered from stomach and digestive issues and they think that his aunt was dx with CC after she was placed in a nursing home. She passed a few years back. It's difficult getting info as most of these relatives have passed on.
My question is: should my sons be tested for lynch syndrome based on what we know (which isn't much). The boys are 25 and 27 years old. My brothers-in-law both had colonoscopies after my husband was diagnosed and one had a couple of polyps that may have eventually turned. He had to go back a year later and now in 3 years. Maybe I'm just looking for things to worry about
!! I will ask our oncologist but thought I'd get some opinions from you all. Thanks for any information you can offer!~Paula
