Postby fumaros » Wed May 17, 2017 8:52 am
I am sorry to hear about your husband. But any SRC stories I have read don't have any "special" treatments for it. I am a little over a year since my diagnosis. What you need to know is that it is aggressive - so the tumor sizes grow faster and the mucus it produces helps it spread faster. That being said, it is treatable, and responds well to the normal chemo regimen, early detection helps as with other cancers, and the only thing done differently that I know of is a lot of close monitoring after chemo, so frequent scans and blood work if applicable - again early detection. Also, MRI's have better resolution and are better for viewing/detecting SRC tumors.
I guess what I am trying to say is that though CRC SRC is scary, but from a technical stand point it doesn't seem to require medication different from standard treatments for colon cancer, so you are not tasked with finding some SRC specialist (and there probably isn't one out there). It is hard to deal with, but it has been found and I really hope your husband responds quickly to treatment.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED