To all who are listening,
I had telescopic bowel at 22 months old. At this time in the 70's little was known about it in my small town. I almost lost that battle. 30 years later, after dealing with your same situations and a few heckles from my current co- workers, I went back to the gasternerology dr.- probabaly spelled wrong- and had him take another look to see if he could help. He just told me to watch my diet like all the others have over the years. So, I had a second opinion with my current Dr. and this guy was a genious to me. He explained my condition to me fully and how my body works with a lack of a I.C.V. It all made sense. He told me that the bacteria in the large intestine were being exposed to foods that were previously broken down by the small intestine. The bacteria in the large intestine were eating it up like candy causing gasses to build up in the large intestine and push the waste out before it was ready to pass on its own. Hope that makes sense. So to cure the problem I needed to "bulk up" on fibre foods to slow down the process. He also told me to eat smaller more frequent meals and watch my carb intake. I made an appointment with a dietition an she helped to explain the difference in carbs and complex carbs. Complex carbs take longer to break down. She gave me a list of foods to try and a list to avoid. The Dr. also suggested a fiber additive like citrucel( not metimucal). There is a difference in fibre and metimucal is the bad one.
After trying this for a few weeks I an proud to say that I have been constipated for the first time in my life. I was regular for about six months with my new diet and exercise but I have let it all go just to be sure it was what helped. Well what do you know. It is all back. The pain, the bloating, the 5 or 6 emergency bowel movements it is all back. Now all I have to do is get back on my diet and watch what I eat. The biggest helpers in my diet were brown rice, oatmeal and fiber bars. Oh, and the citrucel. I think it can be controled but you have to find the right doctor.
Hope this helps! I owe a big thanks to those hecklers. Even though they are my friends, their opinion mattered enough to me to take another look into my problem. Without them I would still be hopeless!