WOW.. what a big difference today was in comparison to John's last surgery 2 weeks ago. For one he did not have dilaudin so no craziness like trying to pull things out.
His ng tube was removed so now he is using the g tube only for his stomach bile. That is much more comfortable for him. Also, while he was so afraid of the pain he actually got up with coaxing to sit in a chair and let me sponge bath him. His mind is back with a positive attitude.
I have not looked at the tubes and ileostomy bag as of yet. One reason is because he has a girdle around him still. So this is good because I need to build my mind to it. And so does he. We'll get there together and that day is tomorrow with the wound/ileostomy nurse coming in to show us a video and train us on the bags.
Now, I know don't jump to the next hurdle before this one is done. But that is impossible for me. I am a planner and I have to know all the steps to beat this stupid disease.
While I know there is a chance that we won't .. in my heart of hearts I truly believe that we can beat it together. No I am not being naive..
Tomorrow I get to talk to the nurse navigator for Baylor Dallas. She'll be setting appointments for us with a new oncologist with Baylor. I am excited because they work miracles. We have been adviced to go with the Mary Crowley research and they'll infuse the tumors with virus' to see what is going to work.
On the first report 2 weeks ago the surgeon wrote this was a palliative surgery because prognosis is poor. But he also told us he looked around and was surprised that the cancer was not as wide spread as he thought it was. He is not a surgical oncologist. Because his information is not in line with our oncologist that said he is still hopefull and optimisitc. But I figure it is time to get aggressive.