Thank you all so much for the replies and thoughts. And thank you Holly, for the email information! Excellent!
Paula, good point about "other" body systems that might need a closer eye on them in the future... makes sense. And of course if I *did* test positive, we would definitely want my sister to have the test, and possibly her daughter (only 22 months old now, but still...).
CBLACK, what I read, I think from the actual Myriad website - regarding discrimination, etc - was that the ONLY thing your insurance company would know is that you actually HAD the test, and asked them to pay for it, or part of it. From the way I understood it, the insurance co. would NOT have any access at ALL to the actual results of the test... only YOU and YOUR doctor would have those. Do I feel 100% safe with that idea? Not really... but I've already been "turned down" for health insurance before due to my health history - colitis and multiple c-scopes, and some "female" troubles - other "minor" stuff - so I figured, what the hey. A year ago my husband was laid off suddenly and we were cut off from the insurance (no COBRA because the business went bankrupt) - and we had to apply for this separate, special policy - and we were denied by both Blue Cross and Coventry, because of MY health "problems." So screw them... I figured we'd take the chance with the genetic test results being totally private. I'm self-employed so rely on hubby's job's insurance coverage...
(BTW, my husband got a new job 10 weeks later and health insurance came included, so I did wind up with coverage via Coventry... even though they had denied me as an "individual" policy...)
From the way the Myriad brochure explains the different genetic colon tests, there IS only the one for HNPPC, called "Colaris." I can find it online if you'd like and post the link... I'm sure the same brochure information is on their website. The other test is the "Colaris AP" which is for "FAP"... the genetic version where you have hundreds of polyps, usually beginning at a younger age. It looks like there are different "levels" of each test, depending on if you are the first one in your family to be tested or not. And if one family member tests positive and then other family members get the test, their tests cost much less! Bonus!
ASTEPHENS33, was your test through Myriad? How long is your wait for results, once the test is actually started? Is it really 4-6 weeks? That just seems so long... though I understand that for the more "comprehensive" test it simply takes that long for them to process it...
Thanks again everyone - have a great holiday weekend!