thank you everyone. I have so many questions, sounds like those of you who are stage IV, and even those who are not know lots about your disease. I think maybe the doc is handling Wanda's situation differently due to the family situation...but I am wondering if I might can start asking questions like I normally would. Can I start a new thread for you guys to help me out? Also, for advice for me to ask him? I'll fill you in on everything so far? Or, am I being too bold?
She is on:
5-Fluorouracil: 5-FU
Leucovorin: LV
Irinotecan (Camptosar)
Her cancer was in most of her colon so they removed it and gave her a colostomy bag. The sugeon has said t may be reversable in the future (if she remains cancer-free for one year. When he went in during surgery, the cancer had spread throughout her abdomen and into her ovarian wall. That's really all the info they have given us, we haven't seen any scans or results, just what they have told us. Now, it appears to have gone into her lymph node in her neck.
The doc is pretty vague at each appointment...he'll say that her numbers look good, time for your next treatment. She had the pet scan after her first couple months of chemo, he told us that the scans looks good, so no need to change chemo, we would keep going with the same drugs...that's about it. So we came away with thinking the cancer was going away? I try to question him, and not read into what he is saying, but Wanda's mom will make up stuff. She will say stuff like "He said the cancer is shrinking, he said it's going away", stuff like that, when he didn't say it. OK, now I'm venting again...
I guess we really need to start questioning him, but it's hard when I'm trying to get Wanda to ask the questions, and keep Mom on track...
So, My new thread...Stage IV Questions? What should I title it so you guys can help me? Guess I can just start one, huh?