worrieddaughter wrote:My mom has had her first round of chemo. She had the folfuri with a couple of others INsomething and Leusomething (sorry big words and I dont have the paper with me) The first 2 days when she still had the pump on she felt great, even energetic. It seems like as soon as she had her pump disconected she plumpeted. She had diarreha a couple of times, cant stand ANY smells, threw up once from the smell of me cooking supper, and she has been sleeping pretty much steady since yesterday afternoon. Does anyone know how long this will last, is there anything I can do? She'll wake up for about 15 minutes at a time at the most and then back to sleep. she is feeling bey down and I qoute "sorry for herself" she said maybe she sees why people quit doing chemo. She said if I have to live like this for 6 months, whats the point of living. Will it be this bad every time?
I think your mother sounds completely normal. I felt very much the same --especially after that first round (before my anti-nausea meds were tweaked). There were plenty of times I couldn't stand the smell of food in the house AT ALL, and the smell of anything being cooked (other than in the microwave) would cause a wave of nausea. Sometimes my mom had to put a plate in front of me and I ate with my eyes closed because I couldn't stand to even look at food. Luckily, I have a wonderful mother and she cooked a lot of meals at her house and brought them to me.
As for the sleep --like most everybody here said: she needs it. One of the kindest things you can do for her is to keep her home in order and as peaceful as possible on bad days.
As for your question "how long will it last"? SIX MONTHS.
Don't expect it to get better as it goes along --for me, it only got harder because the chemo has a cumulative effect. I don't know how to differentiate between chemo side effects and depression... how someone can be on chemo for six months and not expect to be somewhat depressed, at least at times, is beyond me. Her world has been turned upside down.
What anti-nausea drugs does your mom take? I didn't have Emend for the first two treatments, and was sick as a dog... after I started taking Emend (you take one on treatment day, and one for the next two days - three pills per chemo treatment total), the nausea got much better. There are lots of other anti-nausea meds, and from what I've read here, it seems to take a few tries to get the right combo. For me, it was Emend and Zofran. I also smoked pot, but your mom probably won't go for that.