Hi Bobbie,
Sorry for the delay in responding. I'm so sorry your husband is having such problems. The great news is that he got the polyps BEFORE they became cancer - YEAH!!!
I am very concerned about the things you are describing - although it is not completely uncommon to have complications after colon surgery, these seem pretty severe for anyone, cancer or not. Again, the good news is that they can be dealt with, and will get better and better with time.
So now I am going to ask a whole bunch of questions that you might not know the answers to! Sorry for all the questions - if you have time just jot down what you know, it might help explain what is going on. If these things weren't explained to you or you can't remember, you might want to go over them with your husband's doctor.
- I am guessing that they did the surgery because the polyp was too large to take out during a colonoscopy, and the big one was in his rectum (the bottom part of his colon)?
- So they cut his abdomen open and removed the polyp that way, leaving a scar on his belly?
- Do you know if the surgery was done by a colon/rectal specialist or was it done by a general surgeon?
- I am guessing that he got the ostomy (the "bag") after the second surgery - but just want to make sure that it was after the second?
- Do you know if they connected the bag to the large intestine (same thing as the colon) or to the small intestine?
- You say that he has a catheter also? Did they explain why he needs a catheter if it is his colon that is injured? What is wrong with his ureter or bladder that he needs a catheter? Did this happen after the first or second surgery?
- Lastly, and I think most importantly at this point - what kind of nerve damage are the doctors talking about?? Most colon surgery, even rectal surgery, when done by a qualified surgeon, does NOT cause nerve damage. It may cause muscle damage (which may actually be what they are talking about) but it shouldn't damage the nerves, and it shouldn't cause damage to the ureter. The doctors need to explain this to you more clearly. I don't want to raise unnecessary flags, but it is possible that the surgeon damaged your husband without meaning to during the surgery. Again, these complications do happen sometimes, but you should be told exactly what happened.
What happened at the doctor’s appointment on Wednesday? Has there been any improvement? I hope so!
One last thing is that I haven't heard of taste buds going bad after surgery - anyone else?
Bobbie, take a deep breath and please remember to take care of yourself too. Your husband will make it through this, gain his weight back, get rid of the bag and catheter, be back to work, and be back to “normal” again!
Hannah
Hannah K. Vogler
Co-Founder, The Colon Club
cousin of Amanda Sherwood Roberts
dx 1/99 Stage III at age 24
died January 1, 2002 at age 27