I got my copy of RD almost 3 weeks ago, and eagerly read the article. Then, I even more eagerly fired off a stern response !! I found it so misleading and irresponsible, surely their article will do more harm than good. Wouldn't you just guess, they NEVER responded to my e-mail ???!!???
Sally
P.S. Here's what I sent them, for what it was worth . . .
Just call me the poster-child for cancer screening. My
cancer was, as many are, completely atypical, and as a result,
left doctors baffled, and scrambling, just to save my life.
At 31, no one 'expected' me to have advanced rectal
cancer. I wasn't anywhere near the recommended age for
screening tests. In other words, I wasn't 'old
enough' statistically to be viewed as being at risk for
the disease. Family history was sketchy, other than
confirmed diagnosis of one parent 2 years earlier, whose
disease was less invasive,and required less agressive
treatment. Not much basis for comparison given our 38-year
age difference. So, I won the treatment trifecta--permanent
colostomy surgery, pelvic radiation, and a year of chemo
treatments. To hell, and back, and then some, for someone
supposedly 'too young' for the disease that 'old
people get'. I share this to get the word out: SCREENING
SAVES LIVES. Your article recommends thinking twice about
screening for those under age 50. This does a real disservice,
in that it supports the myth that cancer does not affect younger
adults.Statistics can lull patients and doctors into a false
sense of control, that they can'beat the odds', when
the data they are relying on is often out of date. Cancer
breaks the very rules we make in trying to establish
prognosis and treatment, every case is individual. Screening
tests are expensive, but consider the alternative. What they spare
a person, compared with the fear and pain brought on by advanced
disease is priceless. Prevention of advanced disease through use
of screening tests should be the rule, not the exception.
Sally Bickerstaff, age 42
Gretna, Louisiana
Dx:St. 3 rectal ca. on 1-8-98 at age 31. Perm. colostomy,friends refer to it as 'Pedro'.Favorite sentiment:Poop happens!!!