I was dx stage 3 6/13 lymph nodes involved , in Jan 1998. Congrats on your 10 yrs as you can see my 9th anni is coming up in jan.
I also had 5FU and levamisole ,so you have my sympathy. What dreadful stuff that levamisole is. I have had no signs of recurrence since surgery but I have had a lot of problems. I have had several lots of duodenal and peptic ulcers, pancreatitis,lost my gallbladder,kidney stones,liver problems and now my system is showing excess CPK which is an enzme when muscle , particularly skeleto -muscular,deterioration occurs. I have asked the doctor about the role chemo has played and although he suspects that it is a factor ,he will not admit it publically.
I can understand that and from what I have experienced I believe that the chemo may not be the cause but I believe that it is a catylst that accelerates existing problems. I am having problems with my lower back and particularly my right hip. I am wary or taking anti-inflamatories because of ulcer problems but I find that I can't get any sleep without some sort of painkillers at night. I tried excercise ,for a period of nearly two years ,I was walking up to 60 miles a week ,but it made no difference and often made the pain a lot worse. I don't know what the answer is but I sure do get mighty sick of being unwell. I hope you get some resolution to your problems but be aware you are not alone,take care Ron.