My Current Protocol——-All Thoughts/Criticism Welcomed

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Peregrine
Posts: 100
Joined: Tue Mar 01, 2022 1:18 am

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Peregrine » Sat May 14, 2022 6:08 pm

prayingforccr wrote:...It’s the best plan I've been able to come up with...

When you finish all of the protocols in your plan and are finally "out of the woods" after your final stretch, would you consider summarizing the basics of your plan for the benefit of others who might want to take advantage of your extensive research?
Thank you.

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat May 14, 2022 6:15 pm

Peregrine wrote:
prayingforccr wrote:...It’s the best plan I've been able to come up with...

When you finish all of the protocols in your plan and are finally "out of the woods" after your final stretch, would you consider summarizing the basics of your plan for the benefit of others who might want to take advantage of your extensive research?
Thank you.


Of course.

I’m at the end of the 21 day artemisinin and I’m very tired.

I’m kinda excited about the senolytic stack Ive been pulsing every 10 days, but we’ll see.

I’m probably not going to pursue any type of SOC treatment unless there is a relatively reasonable chance of remission/ned.

I have no symptoms, weight is good, I exercise everyday.

See what we see june 13/14

This half alive thing is getting old.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu May 26, 2022 7:39 pm

Peregrine wrote:
prayingforccr wrote:...It’s the best plan I've been able to come up with...

When you finish all of the protocols in your plan and are finally "out of the woods" after your final stretch, would you consider summarizing the basics of your plan for the benefit of others who might want to take advantage of your extensive research?
Thank you.


Heading down the home stretch:

I have done the 21 day artemisinin protocol twice since last scans

Artemisinin Protocol Version One:

Version one uses liposomal artemisinin from Healthy Drops and artesunate from Hepalin:

Each morning for 21 straight days swallow two tablespoons of liposomal artemisinin (1,200 mg) from Healthy Drops.

Chase the liposomal artemisinin with 200 mg of grapefruit juice, 2 capsules of sodium butyrate and 1-2 capsules of piperine.

As well, take 500 mg of artesunate on a pulse basis along with the liposomal artemisinin meaning that you take the artesunate for 3 days with the lipsomal artemisinin and then take four days off of the artesunate (but keep taking the liposomal artemisinin).

Note that on this version you should take 20-30 mg of a heme based iron with 500 mg of vitamin C every other night with your evening meals before taking the liposomal artemisinin.

https://www.healthydrops.net/product/li ... inin-annua

https://www.hepalin.com/hepasunate50.htm


Currently:

I dissolve 2g fenben, .5 t black seed oil, 50mg cbd oil in dmso and top it with grapefruit juice and take with 2 piperine, vitamin e, vitamin d3

I take 2000 mg of liposomal curcumin with food

I take ivermectin dissolved in vodka topped with grapefruit juice and two piperine at around 3am every other day

I take split doses of 500mg cimitedine away from all the others

I take 10mg claritin for clearance

I take tudca and melatonin before bedtime for the liver and kidneys.

I pulse a senolytic stack every 10 days to induce senescence in the cancer cells.

The senolytic stack is as follows:

Luteolin 100 mg
Apigenin 50 mg
Lipo Fisetin 500 mg
Lipo Quercetin 100mg
Resveratol 300 mg
Grape Seed Extract 100 mg
Vitamin c 800 mg
Dhea 50 mg

Pulse every 10 days

3g Alcar taken everyday

Hoping it’s working.

I know it’s better than 1957 chemotherapy
Last edited by prayingforccr on Sat May 28, 2022 11:50 am, edited 2 times in total.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

User avatar
Peregrine
Posts: 100
Joined: Tue Mar 01, 2022 1:18 am

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Peregrine » Thu May 26, 2022 9:07 pm

prayingforccr wrote:...
Heading down the home stretch:

  • I have done the 21 day artemisinin protocol twice since last scans
    .
  • Currently:

    I dissolve 2g fenben, .5 t black seed oil, 50mg cbd oil in dmso and top it with grapefruit juice and take with 2 piperine, vitamin e, vitamin d3

    I take 2000 mg of liposomal curcumin with food

    I take ivermectin dissolved in vodka topped with grapefruit juice and two piperine at around 3am every other day

    I take split doses of 500mg cimitedine away from all the others

    I take tudca and melatonin before bedtime for the liver and kidneys.

    I pulse a senolytic stack every 10 days to induce senescence in the cancer cells.

    The senolytic stack is as follows:

    Luteolin 100 mg
    Apigenin 50 mg
    Lipo Fisetin 500 mg
    Lipo Quercetin 100mg
    Resveratol 300 mg
    Grape Seed Extract 100 mg
    Vitamin c 800 mg
    Dhea 50 mg

    Pulse every 10 days

    3g Alcar taken everyday

Hoping it’s working.

I know it’s better than 1957 chemotherapy

Thank you for providing details about artemisinin and about the current protocol you are following. This will be very useful information for other patients who want to take this approach.

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Fri May 27, 2022 6:10 am

New scans june 13/14.

I cant imagine a third straight scan of neither progression nor improvement and I am expecting things to go one way or the other.

I have no symptoms. My weight is back up to 210. I swim half a mile a day.

According to md anderson, I should be 3/4 dead.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

User avatar
Peregrine
Posts: 100
Joined: Tue Mar 01, 2022 1:18 am

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Peregrine » Mon Jun 06, 2022 11:19 pm

prayingforccr wrote:...
I’m probably not going to pursue any type of SOC treatment unless there is a relatively reasonable chance of remission/ned.

I have no symptoms, weight is good, I exercise everyday.

See what we see June 13/14

I can't imagine a third straight scan of neither progression nor improvement and I am expecting things to go one way or the other.

...

prayingforccr -

Are your next scans still on schedule for June 13/ June 14 ?

If so, when do you expect to have all the results and then the discussions with your team about what to do next?

Another question: Is there still a shortage of IV contrast solution at your hospital? What are you going to do if they cannot do scans with IV contrast this time around?

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Jun 07, 2022 12:52 am

Are your next scans still on schedule for June 13/ June 14 ?

If so, when do you expect to have all the results and then the discussions with your team about what to do next?

Another question: Is there still a shortage of IV contrast solution at your hospital? What are you going to do if they cannot do scans with IV contrast this time around?


All set for next Monday, June 13 scans.

I will get the results that day/evening, and am meeting with Dr Formenti via telehealth Tuesday morning to discuss results.

My hospital is weill-cornell in nyc and doubt they would have issues with contrast supplies, but who knows?

I’d have to follow their lead as to how to proceed if there is.

Definitely starting to “feel it” now.

Final senolytic stack tomorrow, then I’m going to layoff everything to give my liver/kidneys a break.

Weight is good (210), I swim a half mile a day, no issues breathing…………

See what we see.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Fri Jun 10, 2022 11:01 am

CEA 6.6

Highest ever.

Expecting bad things.

I’m probably going to die soon
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

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beach sunrise
Posts: 673
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Fri Jun 10, 2022 7:57 pm

Please don't think like that. It will stress your immune system.
One thing I will say is my ND told me from the beginning why I need to take the supplements (he adviced) in does is because your body only absorbs up to 30% of whatever mg it says as suggested. So, I take supplements in higher does 3 times per day. EX: Vascustatin, I take 6 caps T.I.D. I think suggested dose is 2 per day or something like that.
Your protocol is a good one but maybe up your dosage for a fuller impact?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Rikimaroo
Posts: 421
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Rikimaroo » Fri Jun 10, 2022 10:03 pm

LOL PCCR,

You crack me up bro!!, your so dramatic. Guess what my CEA just went from 50 something to 185 :shock: :shock: :shock:

Your mere 6.6 and you tripping saying your going to die LOL...I am going to die, that's what I think almost always, my scans 10-12 new lung mets, some new liver mets. I am going back on FolFiri now to knock things back down and hope it works. You are no where even close to dying bro. I have cancer pain now, I mean I have been at this way longer then you, 5.5 years now fighting. Breaks can cause progression and in my case it did, sometimes I didn't have a choice but to break because of the other issues I had.

Take it easy, 6.6 is nothing to be concerned about, but does it mean no progression probably not, but you are not doing any SOC so the possibility of progression is higher. I really hope the protocol your doing works though, but maybe if things show up on CT, add some chemo in conjunction with your protocol, even though I know this all sucks.

Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Jun 11, 2022 6:30 am

Maybe it’s shedding/die off :cry:

Very low ferritin, very low iron, very low irob absorption all bad signs as well.

I’ve just read that sodium butyrate can elevate cea levels in blood tests.

I took 3 a day for 2 months, pausing three weeks ago.

Hoping it’s a false positive.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

Claudine
Posts: 699
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Claudine » Mon Jun 13, 2022 1:21 pm

Thinking of you today prayingforccr, I hope you get good scan results XXXXX
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Jun 13, 2022 2:08 pm

Very ungood :(

FINDINGS:
Lungs and airways: Increasing size of multiple bilateral pulmonary metastases since 03/04/2022. For example:

-- a 2.2 x 1.7 cm metastasis in the medial segment of the right middle lobe (series 3 image 79) has increased from 1.9 x 1.3 cm and is merging with a previously separate 1.5 x 1.4 cm and now partially cavitary metastasis (series 3, image 84) that has also increased from 1.2 x 1 cm;

-- a 1.4 x 1.2 cm metastasis in the left apex (series 3, image 31) has increased from 1.1 x 1 cm

-- a 1.3 x 1.3 cm metastasis in the lingula (series 3, image 78) has increased from 0.1 x 0.1 cm;

-- a 1.2 x 1.1 cm metastasis in the superior segment of the left lower lobe (series 3, image 67) has increased from 1 x 0.9 cm with increased cavitation;

-- a 1.5 x 1.3 cm metastasis in the medial aspect of the anterior basilar segment of the left lower lobe (series 3, image 94) has increased from 1.2 x 1 cm.

No new lesions since 03/14/2022.

Mediastinum, Hila, Nodes: Increasing size and number of several mediastinal and to a lesser extent left hilar nodes since 03/04/2022. For example:

-- new 1.4 x 0.9 cm prevascular node (series 4, image 34);

-- new 1.2 x 0.9 cm high right paratracheal node (series 4, image 37);

-- 1.4 x 1.1 cm aortopulmonary node (series 4, image 46), increased from 1.1 x 1.1 cm;

-- 1.6 x 0.9 cm subcarinal node (series 4, image 57), previously 1.6 x 0.6 cm;

-- 1.3 x 1.2 cm left hilar node (series 4, image 50), previously 0.9 x 0.8 cm.

Telehealth with Dr Formenti tomorrow.

Feeling very bummed right now about the lymph nodes, which heretofore, had not been an issue.

Unless, there is a curative intent, I will not pursue treatment.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

Rikimaroo
Posts: 421
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Rikimaroo » Tue Jun 14, 2022 8:06 am

Sorry PCCR - You do know there is no cure for cancer right? There is however therapy to increase livelihood and some people with small mets Chemo does destroy it. Why are you so against SOC?

I truly understand its your prerogative and decision not to do SOC, but cancer is not curable, curative intent is not always an option, but increasing ones life for new therapies to come out is and option. Think about that. Are you scared to do Chemo?

Let me fill you in of how hard cancer is. Right now I have pain in my butthole and discharge from it of blood/mucus all day long, I have to wear diapers, even though I have an ostomy, this is because of tumor invasion of the rectal stump that is there. My left kidney ureter is being pressed by the tumor causing Hydroureteronephrosis which is a obstruction to free flow of urine from the kidney. I go to the bathroom to try and pee thinking I need to but nothing happens, it is very frustrating makes it hard to sleep. Cancer pain is not fun, I am on morphine tablets daily, flomax to help with peeing. I am 43 years old. Sitting down is aggravating, I am squirmy, my entire diaper is soiled all the time, so now I put tissue paper in between my butt and the diaper so I don't have to change the diaper. Believe it or not the only thing that is great is my Ostomy, of course I hate having one, but its giving me my life back. Please read this message in full and THINK, don't be so bullheaded with your thought process. Again most of the people on this site has been through alot, your just breaking the ice and your doing all this bullshit natural stuff that has no statistic that it works.

I was really rooting for you on the natural stuff, you gave us all hope, I was really expecting good results because of it, it would make me feel better to jump on your protocol and drop this shit chemo.

So many rich actors have died from cancer who have the disposable finance to go to Mexico and all these other countries that say they can cure cancer and they are still dead. Be more open minded. If I recall you are in Florida, if you ever want to talk man or meet up let me know.

Cancer is being treated as a chronic disease now, with chemo, just like diabetes and other chronic diseases. I know chemo sucks, surgery, ostomy, radiation, but I been through it all and 5.5 years later I am still hear alive.

This is all because I took a almost 5 month break from Chemo, so it progressed.

Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

prayingforccr
Posts: 370
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Jun 14, 2022 8:33 am

Rikimaroo wrote:Sorry PCCR - You do know there is no cure for cancer right? There is however therapy to increase livelihood and some people with small mets Chemo does destroy it. Why are you so against SOC?

I truly understand its your prerogative and decision not to do SOC, but cancer is not curable, curative intent is not always an option, but increasing ones life for new therapies to come out is and option. Think about that. Are you scared to do Chemo?

Riki


We are going to do sbrt and opdivo/yervoy starting asap.

Life expectancy without treatment is 6 months to a year.

Potential outcomes with treatment are no response to complete remission.

Ive done chemo. I have 0 intention of doing that until death.
Last edited by prayingforccr on Tue Jun 14, 2022 8:42 am, edited 1 time in total.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy


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