My Current Protocol——-All Thoughts/Criticism Welcomed

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beach sunrise
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Fri Feb 04, 2022 6:56 pm

No mutations is one in your favor.
Keep immune system high and inflammation low.
What blood markers do you follow aside from SOC if any?
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Tomaz26
Posts: 13
Joined: Fri Feb 04, 2022 12:10 pm
Facebook Username: tomaz.korosec1

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Sun Feb 06, 2022 3:07 pm

beach sunrise wrote:No mutations is one in your favor.
Keep immune system high and inflammation low.
What blood markers do you follow aside from SOC if any?


You think it is good regarding mutations? I dont know, they way I read it I am in disandvantage as there are a lot of drugs that target those specific mutations, braf, kras etc and I cannot use any of them.. The only advantage I found is with
cetuximab as they say that it works much better in right sided KRAS wild type cancers like mine, but on the other hand I only received one shot and canceled all the rest.. I should go there weekly and I did not recover 14 days after the
first one so ugh.. For Oxi in 2020 it was not that bad as I was max up to 3 days out, then had one so so week and one almost normal week before going in again :D

My immune system I think works very well judging by the blood pannel as it is just crazy that my CEA and CA-19 were always normal, when I had 4x6 cm big tumor in rectum they were normal and also now that I have recurrence and
mets they are stil normal.. But I guess that is how it is with MSS cancer which hides from the body.. SO body does not send troops to fight it hence no inflamation and good blood panel. Also my CRP blood sedimentation and everything else is perfect from the get go.. If one would look only at my blood panel he would deduct that I will live up to 100... :D I do have slightly higher blood sugar, almost prediabetic, but that has been like that for years and my HbA1C is low. Also I have high
SUM of cholesterol for 20 years+ although here too my HDL is very high.. I am borderline underweight my whole life, doing lots of sports, gym etc.. I did manage to smoke for 20 years so there is that.. Oh and my diet was mostly sugar, sweets, hamburgers, lots and lots of red meat, protein powders, BCAA and other nonsense so yeah, I think this is what did it.. Oh and no veggies and occasionaly a banana :D :D :D Some alcohol too so If I look back there were plenty of cancerogens in
my life and because I have no mutations I think this is even more proof I did it with food, stress, too much siting and computer time,...

Sorry for long post :D

Tomaz26
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Sun Feb 06, 2022 3:08 pm

prayingforccr wrote:How often are you monitoring your progress, Tomaz?


About every 3-4 months.. Depends on how they schedule me. I have next screening in march, the previous one was 6th of december.

How are you doing? You will start this trial you talked about in other topic soon?

Tomaz26
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Mon Feb 07, 2022 11:40 am

Are you doing artemisenin like curt suggests? I am afraid of taking 10 capsules on an empty stomach.. :shock: I have 100mg and he suggest 1000mg per day.. Together with capecitabine I currently take and many other supps I think my kidneys and liver will not survive :D

How about diet? I go back and forth between keto or Gerson or... I mean they all have points.. There is tons of research pointing to keto being good, fasting too, specially before chemo etc.. On the other hand you have Gerson and the like which is just the oposite, no fat and loads of carbs.. I know of a person who tracks long term survivals from diet and 90%+ do some vegy style. Here and there some keto, but mostly for glioblastoma where I think it has been quite successfull, specially with a substance called DON that also blocks glutamine..

I was thinking of maybe doing some extreme style diet, like fasting for 30 days and taking some FAO/FAS blocker or something similar.. I did read of a lady who did fasting mimicking diet for 6 months, lost 25kg in the process but also her tumor disassapeared slowly as being eaten away.. She had regular checkups and imaging and each month it was a cm smaller.. But it was not CRC. As healthy cells are much more adaptable than cancer cells which are caught in a loop of fermentation etc I think there could be a way there, but one would have to block some pathways and leave some open so regular cells still get energy.. Cancer likes to grow, for other cells it is enough to just stay as they are, recycling etc.. But yeah, maybe I just dream too much :D

Tomaz26
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Wed Feb 16, 2022 2:54 pm

Keeping fingers crossed results come out good!

You said you tried deep ketosis. Do you think it helped? As more and more evidence comes out specially keto + chemotherapy. I tried it once for 14 days but hated it.. BUt if I knew it would help I would
stick with it for sure.. On the other hand like I said there is Gerson which is just the opposite and also good results.. No fat, fruit juices which is all sugar,.. Go figure.. :D

Tomaz26
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Thu Feb 24, 2022 1:46 pm

I hear ya. I went from 150 lbs to 130 lbs, intentionally to "starve" cancer, until I figured out that this approach has probably more negatives than positives as it just raises cortisol and puts
body in additional stress.

As for diet I am still unsure which way to go..

Keto (Sigfried, Nasha Winters, Dom D Agostino, Paleomedicina.com), vs Plant based (grape cure, carrot cure, Gerson therapy)? They are the oposite. One is all fat, the other almost zero fat.. So which is it now? Ray Peat and Georgi Dinkov are all pro sugars and fruits and publish a lot of data showing fat is the main problem not demonisation of sugar as body anyway turns other sources to sugar. They say fasting + IF is just putting stress to the body, raising cortisol which raises stress response which is bad for cancer patient. Or is best low methinone diet to lower IGF-1? I think keto + chemo is gaining traction but again, just depends who you listen too.

Jody Ledley tracks long term stage 4 cancer survivors and almost all (now already 100+) turned to some version of vegan diet. You can find her table in below link:

https://onedrive.live.com/view.aspx?res ... &sw=bypass

A must read from Georgi Dinkov on below link, showing how fat is the main driver of cancer. And not even dietary fat as cancer just makes its own!! Acidosis (Warburg Effect) drives cancer through increased fat oxidation (Randle Cycle)

http://haidut.me/?p=653

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beach sunrise
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Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Tue Mar 15, 2022 2:15 pm

WooHoo!!! Way to go pccr.
Keep up with protocol...hammer it and hammer some more.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Rikimaroo » Tue Mar 15, 2022 2:21 pm

wow PCCR, great news man. Very happy for you, where did you get all the stuff that you are using amazon?
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby claudine » Tue Mar 15, 2022 2:24 pm

That's fantastic!! So happy for you. Enjoy Spring :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

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beach sunrise
Posts: 1034
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Tue Mar 15, 2022 2:49 pm

Hey, I am not stunned. I was so impressed with the regime you put together. Very powerful anti-cancer protocol. It worked in synergy!
Keep up with bloodwork along the way say every 7 to 14 days looking for trends.
Yes, IVC would def help also. How many grams per infusion you thinking?
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Tomaz26
Posts: 13
Joined: Fri Feb 04, 2022 12:10 pm
Facebook Username: tomaz.korosec1

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Wed Mar 16, 2022 6:51 pm

Wooohooo, congrats man!

I think artemisinin made the biggest difference.. ! Fenben could be a factor too as both have a loot of promising stories and research behind it. So does ivermectin which as they say can turn the cold tumor hot! I think Curt really made
an awesome anticancer protocol with adition of MSM, Coq10, some mushroom extracts, garlic + lemon etc.. IV Vit C as Mark and Jane say has also lots of good research behind it. So does high dose THC + CBD.. Curcumin for sure as it works
on so many pathways simultanuously like no other supplement. Some do one, some do other, but curcumin I think does 6+.

I sent you a PM about protocol, but maybe you can also share your protocol here if others find it interesting. I am trying to do someting similar, but I paused artemisinin for a bit now as I am dealing with tinnitus which I never had
before and I saw that artemisinin can cause it, but so can capecitabine, which I also take, but very very small dose, which should not cause it. I am being presribed 2 x 2150mg daily, but I took like 2 x 500mg and not even all the time.
So for now I suspect either high reishi extract (8:1 from nootropics depot which I took together with turkey tail extr) or artemisinin which I read can also cause when tested on patients who took it for malaria.. Ototoxicity from both.. But ok
if it stops with tinnitus I can manage that, I am afraid it could progress to something worse..

Anyway would be nice to see your protocol in detail exactly what you took in what dosage and when, before/after meal, artemisinin which derivatives, it you took ti together with heme iron? There are just so many options here and
a lot of them matter at the end :)

hope not asking too much as I think it can also help others which will read thise thread for months or even years to come :)

Tomaz26
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Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Fri Mar 18, 2022 4:09 pm

Thank you very much for reply and detailed explanation of protocol! I do something similar now altough currently with much lower doses of artemisinin. I am afraid to pop 10 pills of artesunate and 1.200mg of artemisinin, ugh. Studies I saw used much lower doses and I hope I do not destroy liver in the process :D Ok Tudca and MSM should help a bit, if I locate tudca here anywhere..

Did you have any side effects from that high dose or art?

I suppose you do not use any CBD or T H C?

The things that should work for CRC and have many studies and user stories are high dose curcumin, artemisinin, ivermectin, fenben, cbd&thc, DCA, 2DG.. Lately some colloidal silver and methylene blue stories emerging, high dose milk thistle and quercetin. Also muhsrooms! A lot of very positive stories for reishi, turkey tail, lions mane,.. And of course many natural treatments and diets like you described in last post. Gerson, Breuss, raw vegan.. I saw most survivers in raw vegan column..
I guess pick your posion and do it thoroughly. For now I am just mixing it up too much and not taking large enough doses of anything to really make a difference. I will need to up the game and hope it works. Still better and I guess less side effects than from Oxaliplatin or similar agents...

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beach sunrise
Posts: 1034
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Fri Mar 18, 2022 6:55 pm

From what ND said, most supplements can be taken in high dose up the 3x the suggested amount. Reason being is the body only processes what it can absorb in a timely manner. Most of my supplements such as milk thistle (silophos) I take 6 caps T.I.D, genistein 7caps T.I.D, ect.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

User avatar
beach sunrise
Posts: 1034
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Mar 24, 2022 9:58 pm

Hey pccr, question for you.
Is your protocol just for CRC?
My daughter in laws dad has liver cancer that has spread to pancreas and spine, so just asking.

AND ya, food is important :)
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

MadMed
Posts: 216
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby MadMed » Thu Mar 31, 2022 4:41 pm

Wow, well it is doing something for sure. That’s a big drop, neulasta shot can boost it if you want to go that route.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022


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