Eleventh Year

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NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Eleventh Year

Postby NedPlease » Wed Mar 31, 2021 10:26 pm

Hi,

It’s been a while since posting. I’m in my eleventh year now since a 2010 Stage 4 diagnosis. NED since 2011. Still I can’t believe I’m here but clearly I am. Why?...I do not know but I have seen both my children marry lovely people and am now expecting a first grandchild.

I prayed for five years and a counselor asked why not ten? That would be crazy and impossible, I responded. Well, guess it wasn’t impossible after all.

I no longer think of cancer every minute of every day but it’s always there and always will be to some extent. Kinda hate mentioning the NED thing for fear of jinxing myself. But it’s important to share, to know it’s possible to survive and enjoy life again.

My thoughts are never too far from this forum which was so important to me (a lifeline really) as I researched my treatment options and received support and knowledge from many here.

Many thanks.

Best to all,
NED
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Bpaint
Posts: 68
Joined: Sun Oct 11, 2020 8:54 pm

Re: Eleventh Year

Postby Bpaint » Thu Apr 01, 2021 9:25 am

Thank you so much for sharing!
husband (age 41 at dx):
8/20 CRC Stage 4. Mets to lungs, liver, distant lymph nodes
MSS, KRAS wild
CEA 713 at dx
Folfox (12 rounds)
Liver, colon and node resection 4/21
New lung mets, Vectibix monotherapy started 6/21
Stop Vectibix lungs stable about 6 months; all other areas stable
Start Folfiri + avastin 1/22
Stop Folfiri (lungs stable 6 mos); start Vectibix 7/22
Stop Vectibix 12/22 (lungs stable 5 mos this time)
SBRT on lung Mets scheduled for 1/22, will restart Folfiri

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Eleventh Year

Postby claudine » Thu Apr 01, 2021 11:05 am

Fantastic :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Eleventh Year

Postby claudine » Thu Apr 01, 2021 12:20 pm

As it happens, today is the 3rd anniversary of my husband's diagnosis. I remember reading the survival stats of mCRC and feeling this sinking sensation in my stomach... But his oncologist has always been very positive. One day at a time, and there you are getting past the 10 year mark! Very inspiring!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Eleventh Year

Postby stu » Thu Apr 01, 2021 5:51 pm

Great news . Always loved your user name and even better to see it still popping up on the forum . So good to see names from the past still doing well .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Eleventh Year

Postby DarknessEmbraced » Fri Apr 02, 2021 11:54 am

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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