Postby Rikimaroo » Sun Mar 28, 2021 9:06 am
Hi Cynthia,
PET/CT is the right scan. CT Scans are not very good, unless you have a large mass and it can be seen. In Fact I had two CT Scans the past 6 months and they showed no progression but my CEA kept going up from 5.2 to 51. Then I got a PET/CT and it showed progression. Nothing significant but progression none the less, which means back on Chemo FOLFIRI to beat it back down.
6.8 is not bad, although scary any CEA increase. Most likely nothing will show on PET/CT and you can keep doing what you have been doing, or he can hit you with a dose of CHEMO to knock things back down if anything. There treating cancer like a chronic illness. I hate Chemo by the way, but I need to live as long as possible.
I get it once every 3 weeks, too which helps.
I hope its nothing and you can keep on the Keytruda!!
Best
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.