Approaching 3 years NED Soon but CEA at 5.9 recently..

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jumpman50512
Posts: 11
Joined: Thu Jan 10, 2019 10:36 pm

Approaching 3 years NED Soon but CEA at 5.9 recently..

Postby jumpman50512 » Mon Feb 01, 2021 8:52 pm

Hello everyone

I am currently approaching 3 years ned.. i had tons of CT scans but 2 colonoscopys and everything came out good. My CEA was fine but it went from 1.5 to 5.9 recently. I talked to the doctor he stated not to worry about it. CT and Colonoscopy was fine. I told him i smoked marijuana he told me that could be the issue and also told me to stop and not even be in the same room were people are smoking. So i agreed i would like to see my CEA go down i am little worried to be honest. I get another check up on my blood in two months. My iron has been going up which is good.

any thoughts?

thanks everything

I will be getting more here it helps destress this ct scan took a tole on me mentally
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
CEA currently at 5.6 (maybe due to marijuana)

utahgal7
Posts: 43
Joined: Fri Sep 11, 2020 12:04 pm

Re: Approaching 3 years NED Soon but CEO at 5.9 recently..

Postby utahgal7 » Tue Feb 02, 2021 9:04 am

Hi,

If your doctor is saying not to worry, I would trust what he is telling you. I know that rising CEA levels are stressful as hell though! The anxiety is a complete mind f**k! FYI, someone on here told me that inflammation can make your CEA rise as well. I am NOT saying that inflammation is the cause for your rising CEA level. I am just saying that is something to consider along with your marijuana usage.

Best wishes,

Paige
02/20 Rectal Cancer dx - 2 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9
04/20 ST Radiation
04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS; moderately differentiated adenocarcinoma
05/20 CAPEOX
08/20 Ileostomy reversal
09/20 CT scan; suspicious areas in liver;
10/20 MRI liver; dx hemangioma
12/20 CT scan; lung nodules (watch and wait)

User avatar
horizon
Posts: 1604
Joined: Tue Apr 12, 2011 10:10 pm

Re: Approaching 3 years NED Soon but CEO at 5.9 recently..

Postby horizon » Tue Feb 02, 2021 6:29 pm

utahgal7 wrote:If your doctor is saying not to worry, I would trust what he is telling you.


Second this advice.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

michelle c
Posts: 1912
Joined: Wed Dec 02, 2009 3:58 am

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

Postby michelle c » Wed Feb 03, 2021 7:03 am

“Don’t worry about it” Easier said than done eh?
It’s normal for it to bounce around a bit. Hopefully at your next test it would have gone down.
Hang in there! :wink: :)
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

polluxx
Posts: 68
Joined: Thu Jul 10, 2008 9:41 pm

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

Postby polluxx » Wed Feb 03, 2021 11:20 am

My oncologist recommends CBD/THC from my nerve pain and joint pain. Because I live in California, I’m able to get it in drops or in capsule form rather than smoking it. I’m pretty sure that isn’t causing my CEA to rise because my last result was 1.2 down from 1.5 during Chemo.

I’m wondering if the act of smoking is causing inflammation in your lungs which is then causing your CEA to rise. I’m off to do some research on the subject. Hopefully that is all that is causing the issue.

I’m hoping your next blood draw brings good news. Keep us posted.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox
9/2020 Finished FolFox
12/2020 PET Scan-NED
1-2021 CTdna test-Negative!!!

I_will_fight
Posts: 62
Joined: Mon Jun 29, 2020 3:38 pm

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

Postby I_will_fight » Wed Feb 03, 2021 10:30 pm

polluxx wrote:My oncologist recommends CBD/THC from my nerve pain and joint pain. Because I live in California, I’m able to get it in drops or in capsule form rather than smoking it. I’m pretty sure that isn’t causing my CEA to rise because my last result was 1.2 down from 1.5 during Chemo.

I’m wondering if the act of smoking is causing inflammation in your lungs which is then causing your CEA to rise. I’m off to do some research on the subject. Hopefully that is all that is causing the issue.

I’m hoping your next blood draw brings good news. Keep us posted.


I understand smoking (even just tobacco) can elevate CEA levels, in fact they typically define "normal CEA" threshold at a higher lever for smokers than non-smokers meaning they expect to encounter more CEA in smoker's blood.

I am guessing smoking marijuana (which is normally mixed with regular tobacco) might also trigger the elevation.

OP - Good luck with your next blood test, hopefully this was just a fluke.
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

Punky44
Posts: 467
Joined: Mon Oct 01, 2018 4:29 pm

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

Postby Punky44 » Thu Feb 04, 2021 2:07 am

C-E-A—Causing Extreme Anxiety

I know the feeling—any rise always makes me nervous but you’d be surprised how many times people’s CEAs rise only to fall the next time, for a totally benign reason.

Hang in there.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0
Latest update: 12/17/20: Clear CT; CEA 3.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.


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