kick'n ass cancer's ass

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kick'n ass cancer's ass

Postby muskokamike » Sun Jan 31, 2021 11:59 pm

Seven years ago I entered the month of February not even knowing if I would see another January. I was absolutely terrified. I had just completed my five weeks of chemo/rad and I was now preparing for what my doctor referred to as the big operation.

Big, was an understatement. It would be a six hour surgery with the possibility of a permanent bag.

Cancer had completely taken over my life.

It's now been seven years since and I am still reading and posting on Colon Talk. Although not as often as I once did, I still come here weekly and I most likely always will. Over the years the orchestra has changed, but the song remains the same. Like me, you are all waging your own war on cancer and you are fighting with everything you have.

During my war I kept notes on everything and afterwards I wrote my journey journal. It was my hope to someday share it with others just starting out on their journey. I remember how I always gravitated and read anything that offered me any sliver of hope especially in those early days.

I got so much hope by visiting Colon Talk daily.

Many have read and liked my story.

For those of you who are new and haven't, I will throw it up on here once again. If it gives one more person the same hope that I would desperately cling to almost seven years ago when I joined this forum, it will be worth the time and effort I put into it.

Good luck too everyone here.

Chin up and you've got this.

Last edited by muskokamike on Mon Feb 01, 2021 8:23 pm, edited 1 time in total.
53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

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Posts: 10269
Joined: Sun Feb 10, 2008 6:00 pm

Re: kick'n ass cancer's ass

Postby CRguy » Mon Feb 01, 2021 2:49 am

Hey homie
good hearing from you and here's backatcha'

Kick ASS and take names


Cheers and Harmony on the Journey bro'
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 3554
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: kick'n ass cancer's ass

Postby DarknessEmbraced » Mon Feb 01, 2021 11:12 am

Congratulations on 7 years! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Posts: 62
Joined: Mon Jun 29, 2020 3:38 pm

Re: kick'n ass cancer's ass

Postby I_will_fight » Mon Feb 01, 2021 12:18 pm

Congratulations on your 7th anniversary
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

Posts: 12
Joined: Thu Jan 10, 2019 10:36 pm

Re: kick'n ass cancer's ass

Postby jumpman50512 » Mon Feb 01, 2021 8:32 pm

Congrats I hope to be in your position some day

currently almost 3 years with no treatment

Cea currently went up to 5.6

just hoping for the best....
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
CEA currently at 5.6 (maybe due to marijuana)

Posts: 3
Joined: Mon Sep 03, 2018 3:07 pm

Re: kick'n ass cancer's ass

Postby rtomlin » Thu Feb 11, 2021 9:44 pm

Awesome story and riveting reading; you
should post this every year.

Posts: 467
Joined: Mon Oct 01, 2018 4:29 pm

Re: kick'n ass cancer's ass

Postby Punky44 » Sat Feb 13, 2021 10:54 pm

Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0
Latest update: 12/17/20: Clear CT; CEA 3.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Posts: 8
Joined: Thu Nov 05, 2020 12:24 pm
Location: Atlanta

Re: kick'n ass cancer's ass

Postby Blakeacw » Thu Feb 18, 2021 9:12 am

Thanks for posting this - it is super encouraging to hear the story in detail and read the roller coaster of emotions many of us ride - this gives all hope - and you're still playing hockey !
Colonoscopy 8/2020 - cancer diag. 9cm mass
Colectomy 8/2020 - successful -margins cleared
2 /16 lymph nodes -m1 tumor deposit
Pt3 n1b

Port installed 9/20
Folfox - 10/12 rounds complete

Round 1 - 9.28
Round 2 - 10.12
Round 3 - 10.26
Round 4 - 11.9.20
Round 5 - 11.23.20 OXA - reduced to 88% of dosage due to neuropathy
Round 6 - 12.14.20 - Deferred 11/30
Round 7 - 12.28.20
Round 8 - 01.11.21
Round 9 -01.25.21
Round 10 - 02.08.21

8.6.20 - 8.70 Prior Surgery
9.4.20 - 3.00 Post Surgery

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