Non cancer issues on scan

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polluxx
Posts: 68
Joined: Thu Jul 10, 2008 9:41 pm

Non cancer issues on scan

Postby polluxx » Tue Jan 26, 2021 10:18 pm

The great news is that there was no evidence of disease when I had my PET scan in December.

Unfortunately it did show “wide mouthed incision hernia with mild rectus diastases and slight bulge of a segment of traverse colon and mesenteric fat into the bulge.” And also “Intrathoratic thyroid goiter displacing trachea to the right, most likely multinodual goiter with mild intrathoratic extensions”.

My oncologist said that the goiter might be harmless, but let’s check thyroid levels just to make sure. I got a voice mail that my thyroid results were abnormal, and I’m meeting with my primary care physician tomorrow to make a plan.

My oncologist didn’t mention the hernia at all.

Has anyone had to have an incisional hernia repaired? I’ve read that the recovery is worse than the recovery from the hemicolectomy.

I’m in recovery mode, losing weight and swimming 6 days a week. I really hope that I don’t need another surgery.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox
9/2020 Finished FolFox
12/2020 PET Scan-NED
1-2021 CTdna test-Negative!!!

polluxx
Posts: 68
Joined: Thu Jul 10, 2008 9:41 pm

Re: Non cancer issues on scan

Postby polluxx » Wed Jan 27, 2021 10:33 pm

Just checking in to update.

My thyroid was a little hyper, but just a little, so we are going to wait and watch. We are going to add a thyroid check to the labs I’m getting every 3 months.

I’m going to see my surgeon to see if he thinks my hernia is at risk for strangulation or if we can wait and watch that as well.

I got a message this morning that my ctDNA was negative, so I’m breathing a little sigh of relief.

My husband is popping a little champagne to celebrate.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox
9/2020 Finished FolFox
12/2020 PET Scan-NED
1-2021 CTdna test-Negative!!!

stu
Posts: 1441
Joined: Sat Aug 17, 2013 5:46 pm

Re: Non cancer issues on scan

Postby stu » Thu Jan 28, 2021 7:25 am

Can’t help with the issues but just want to celebrate the good news aspects .
Hope you enjoyed the champagne!

My mum left her hernias alone . They are not strangulating and although they can fill up with fluid on some of the CT scans they are much smaller than straight after surgery .
They have never been any real concern and she just feels as though she has had enough.
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

KimT
Posts: 693
Joined: Sat Feb 20, 2010 8:53 pm

Re: Non cancer issues on scan

Postby KimT » Thu Jan 28, 2021 9:52 am

My final surgery was a hernia repair. It was large and was giving me problems. It was the easiest surgery but the longest recovery. Recovery wasnt hard per se but it took a long time to get back to normal activities. But I followed the advice of my surgeon to a T. It’s likely the hernia was caused by doing too much too soon after a previous surgery.

Unless it is giving you problems, you don’t need surgery. It’s up to you really. Mine was large and anytime a loop of bowel got caught in it, it was very painful and there was nothing I could do about it but lay on the floor on my back and hope gravity would settle the bowel back down into place. It got to the point it was happening a couple times a week and I chose to have surgery. Recovery was long but not hard per se. Just frustrating for me to not be able to do certain things but I did not want the mesh to fail and I did not want to have any more surgeries so I followed instructions exactly.
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

polluxx
Posts: 68
Joined: Thu Jul 10, 2008 9:41 pm

Re: Non cancer issues on scan

Postby polluxx » Thu Jan 28, 2021 1:42 pm

That would be great if I don’t need to have surgery on the hernia. I feel like I’m just getting strong again after Chemo. I am swimming 6 days a week and losing some of the weight I gain from steroids. I would be so disappointed if I needed to stop for surgery and recovery right now. I trust my surgeon though, so I’ll do whatever he thinks I need to do.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox
9/2020 Finished FolFox
12/2020 PET Scan-NED
1-2021 CTdna test-Negative!!!

Utwo
Posts: 272
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Non cancer issues on scan

Postby Utwo » Thu Jan 28, 2021 7:17 pm

I keep my umbilical hernia "as is" in case they need to do another surgery.
I am not sure how many times they can reuse the same belly button for laparoscopic port.

My hernia doesn't hurt so far.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas

jumpman50512
Posts: 11
Joined: Thu Jan 10, 2019 10:36 pm

Re: Non cancer issues on scan

Postby jumpman50512 » Mon Feb 01, 2021 8:37 pm

I had to big ass hernias after ward

right in the middle of liver recession

i had it fixed

and yea recovery sucks but i learned how to push past the pain
Stage IV Survivor Currently (Diagnosed @ 29) currently 33
1 Met to the Liver
Colo-Rectal cancer surgery
12 rounds of chemo + Radiation + Oral Chemo
12/1/21 Colonoscopy Clean
2/1/21 CT scan Clean
CEA currently at 5.6 (maybe due to marijuana)

polluxx
Posts: 68
Joined: Thu Jul 10, 2008 9:41 pm

Re: Non cancer issues on scan

Postby polluxx » Wed Feb 03, 2021 11:34 am

I’m so frustrated with myself. Just when I was catching my stride, I slipped this weekend and twisted my knee. Now I’m back on bed rest. Hopefully all I need is to continue ice, elevation and ibuprofen.

I can’t swim or do any exercises until my doctor has a second look at it after a week of rest.

I know it is such a very small issue here when we are all facing such real tragedies, but I would really appreciate prayers for the healing of my knee. Getting strong after the year I’ve had was making me so happy and so hopeful. I hate the setback.

I so appreciate everyone here.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox
9/2020 Finished FolFox
12/2020 PET Scan-NED
1-2021 CTdna test-Negative!!!

I_will_fight
Posts: 62
Joined: Mon Jun 29, 2020 3:38 pm

Re: Non cancer issues on scan

Postby I_will_fight » Wed Feb 03, 2021 10:40 pm

Hey, congratulations on your clean CT, that is the most important thing!

I also have a bit of post-surgical hernia and diastasis on the recti muscles, as a result my belly looks round and there is a small protrusion on my belly button.

It is unsightly for sure but I dont think it poses a functional problem in my case. Does it impair your life in any way?

I am not sure how to handle it, doctor told me to avoid gaining weight (I lost 12 kg but have already recovered about 10) and be careful when exercising the area... surgery is a possibility but I don´t want to do it right now.

Good luck, BR
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.


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