Constant bowel movement and burning bottom!!!

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Staceydh08
Posts: 1
Joined: Mon Jan 18, 2021 6:30 pm

Constant bowel movement and burning bottom!!!

Postby Staceydh08 » Mon Jan 18, 2021 7:37 pm

Please Help!
My Father ‘n’ law is having a very hard time right now. He was diagnosed with Stage 4 colon cancer in 2018. After resecting and removing the cancer he was later informed the cancer had spread to numerous places throughout his body.
He was given the option to have a Reversal. As a family we thought that would allow him to live a better life and do more with the family before he gets worse.
BOY we were wrong!! It’s been a year since the Reversal and we are at a lost for words. His bottom is blistered and feels like it’s on fire! He’s tried every cream and prescription cream known to man. Powders don’t seem work either or we haven’t came across a good one yet. After every bowel movement he has to take a shower and rinse off then uses a hair dryer to ensure his bottom is dry. Then moments later he’s back to square one with no relief.

Please help. Any word of advise is a blessing at this moment in our life :(
1) What kind of food or meals seem to help lesson constant stops to the restroom?
2) What drinks to avoid?
3) Currently takes OTC Imodium and a prescription to try and control the bowels but isn’t working!! “Constant acidic diarrhea”!!!
4) Butt creams or powder that have helped you?
5) Should he eat more “Small frequent meals”?
6) Baths??

Please help and thank you fo listening.
-Stacey

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beach sunrise
Posts: 369
Joined: Thu Mar 05, 2020 7:14 pm

Re: Constant bowel movement and burning bottom!!!

Postby beach sunrise » Tue Jan 19, 2021 12:10 am

Sitz baths with baking soda and epsom salt will neutralize the bacteria and acid getting on his skin is what comes to mind (back from radiation days). Something like butt paste that is thick can protect the skin after its been cleaned and bad stuff neutralized.
Not an expert here just saying its one thing that might help.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
Green Tea
Posts: 300
Joined: Mon Oct 24, 2016 10:48 am

Re: Constant bowel movement and burning bottom!!!

Postby Green Tea » Tue Jan 19, 2021 1:18 am

In 2016, Green Tea wrote:Here are some links to past topics that discussed butt burn:

Butt burn
http://coloncancersupport.colonclub.com/viewtopic.php?t=21332

Diarrhea, painful anus, calmoseptine (?) - help plz
http://coloncancersupport.colonclub.com/viewtopic.php?t=43392

My bum is on FIRE! - i'm reversed!!
http://coloncancersupport.colonclub.com/viewtopic.php?t=40894

SOS ---Radiation burn on backside relief!!
http://coloncancersupport.colonclub.com/viewtopic.php?t=20162

Butt Burn Observations and Notes for People Contemplating Takedown
http://coloncancersupport.colonclub.com/viewtopic.php?t=11098

Butt burning...
http://coloncancersupport.colonclub.com/viewtopic.php?t=32310

itchy burning hynie
http://coloncancersupport.colonclub.com/viewtopic.php?t=11830

Pain in the butt
http://coloncancersupport.colonclub.com/viewtopic.php?t=55300

butt burn HELP
http://coloncancersupport.colonclub.com/viewtopic.php?t=18582

OnlyRectal Cancer Survivors - Questions Specifically for You
http://coloncancersupport.colonclub.com/viewtopic.php?t=7804

Flaming Butt!
http://coloncancersupport.colonclub.com/viewtopic.php?t=44256

Unfortunately important for us
http://coloncancersupport.colonclub.com/viewtopic.php?t=33574

when Calmoseptine doesn't cut it
http://coloncancersupport.colonclub.com/viewtopic.php?t=8267

I found something to help with pain! It is a lifesaver
http://coloncancersupport.colonclub.com/viewtopic.php?t=38627

Radiation Proctitis ?? after Reversal surgery...
http://coloncancersupport.colonclub.com/viewtopic.php?t=11387&p=85018#p85018

Rock_Robster
Posts: 532
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Constant bowel movement and burning bottom!!!

Postby Rock_Robster » Tue Jan 19, 2021 3:39 am

Best resource I’ve found on this topic by far:

https://irp-cdn.multiscreensite.com/e78 ... urgery.pdf

Good luck!
38M Australia
10/2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1, Dec-20: 2.3
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (CT/PET/MRI) - latest Dec 2020
07/20 Clear scope

utahgal7
Posts: 43
Joined: Fri Sep 11, 2020 12:04 pm

Re: Constant bowel movement and burning bottom!!!

Postby utahgal7 » Tue Jan 19, 2021 8:31 am

Hi,

I agree with beach sunrise about sitz baths. Sitz baths were extremely helpful to me after radiation. If you can find a sitz bath basin that fits over toilet seat, that is much easier than having to constantly get into and out of the tub. Also, a peri bottle is helpful to rinse bottom after bowel movements. **Your father-in-law would need to ask his doctor if the following products are ok to use.** As far as creams go, I used a product called Boudreaux's butt paste (maximum strength) diaper rash ointment. It's super thick and it helped me. I have read that Calmoseptine ointment is good as well. Again, please ask the doctor. FYI, all of these products are available on Amazon. When I was having frequent loose bowel movements, my oncologist prescribed Lomotil (it's only available by prescription). As far as diet goes, my hospital's nutritionist was extremely helpful with food suggestions.
Last edited by utahgal7 on Tue Jan 19, 2021 11:29 am, edited 1 time in total.
02/20 Rectal Cancer dx - 2 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9
04/20 ST Radiation
04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS; moderately differentiated adenocarcinoma
05/20 CAPEOX
08/20 Ileostomy reversal
09/20 CT scan; suspicious areas in liver;
10/20 MRI liver; dx hemangioma
12/20 CT scan; lung nodules (watch and wait)

itsfineimanurse
Posts: 1
Joined: Wed Apr 29, 2020 6:49 pm

Re: Constant bowel movement and burning bottom!!!

Postby itsfineimanurse » Tue Jan 19, 2021 9:10 am

*** Disclaimer: this is NOT medical advice***

Butt, I remember hearing stories when I first started working in healthcare that "the skins have never looked better" than when they used straight up Crisco shortening. It's thick, water resistant, and relatively cheap. I'm not sure if it actually works, but it's worth a shot, especially if nothing else is working *shrug*

I'm sorry he (and the rest of you) are suffering through it and I hope, if this doesn't work, that you find something that brings relief xx
34F, 2 kids (2.5 yrs old and 8 months)
Diagnosis pretreatment: T3b N1a rectal cancer (01/2020)
05/06 8 rounds FOLFOX complete
05/26 Started Xeloda and radiation
08/05 MRI "moderate" regression, tumor volume shrunk by 87%, lymph nodes clear
09/10/2020 Robotic assisted LAR with diverting ileostomy- pathology: no residual cancer,the remaining "tumor" was basically a polyp (hallelujah!!)

User avatar
horizon
Posts: 1604
Joined: Tue Apr 12, 2011 10:10 pm

Re: Constant bowel movement and burning bottom!!!

Postby horizon » Tue Jan 19, 2021 11:25 am

Staceydh08 wrote:After every bowel movement he has to take a shower and rinse off then uses a hair dryer to ensure his bottom is dry. Then moments later he’s back to square one with no relief.

Would a bidet help with this? I've never felt cleaner after using one and it would hopefully negate the need for a shower after each bathroom trip.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

User avatar
Green Tea
Posts: 300
Joined: Mon Oct 24, 2016 10:48 am

Re: Constant bowel movement and burning bottom!!!

Postby Green Tea » Tue Jan 19, 2021 2:08 pm

Rock_Robster wrote:Best resource I’ve found on this topic by far:

IMPROVING BOWEL FUNCTION AFTER BOWEL SURGERY
https://irp-cdn.multiscreensite.com/e781d8dc/files/uploaded/Improve%20Bowel%20Function%20After%20Surgery.pdf

Good luck!

Thanks, Rob, for the link. Excellent resource and very easy to use.

    IMPROVING BOWEL FUNCTION AFTER BOWEL SURGERY
    TABLE OF CONTENTS
    Introduction -------------------------------------------------------------------------------------------1
    What happens to the bowel during surgery? ----------------------------------------- 1
    Normal bowel function and what can go wrong after bowel surgery --- 4
    Summary—Problems with bowel function after bowel surgery ------------ 5
    Flatus ---------------------------------------------------------------------------------------------------- 7
    Treating problems with bowel function
    1. Slow down your colonic transit time --------------------------------------------------7
    Diet -------------------------------------------------------------------------------------------------------- 8
    Fibre & fibre supplements --------------------------------------------------------------------- 9
    Medications ---------------------------------------------------------------------------------------- 10
    Stress management ---------------------------------------------------------------------------- 11
    2. Empty your bowel more effectively ------------------------------------------------- 11
    Good toileting habits ----------------------------------------------------------------------------11
    Assisting rectal evacuation ----------------------------------------------------------------- 12
    3. Improve your ability to “hold on” ------------------------------------------------------ 13
    Pelvic floor muscle training ------------------------------------------------------------------13
    Physical activity ----------------------------------------------------------------------------------- 13
    Summary—How to improve bowel function -----------------------------------------13
    Skin care
    What causes perineal skin problems? ------------------------------------------------- 15
    How can perineal skin problems be prevented and treated? --------------- 15
    Cleaning the skin ----------------------------------------------------------------------------------15
    Preventing skin breakdown and assisting healing ------------------------------- 16
    Skin care products ------------------------------------------------------------------------------- 16
    Types of products -------------------------------------------------------------------------------- 16
    Applying creams, ointments and protective films -------------------------------- 17
    Summary—How to protect and heal the skin --------------------------------------- 17
    AFTER SURGERY
    Sexual activity after bowel surgery ------------------------------------------------------ 19
    What if things are not getting better?--------------------------------------------------- 19
    Useful contacts ------------------------------------------------------------------------------------20
    Food chart ------------------------------------------------------------------------------------------- 22

    Reference

Phillypatient
Posts: 40
Joined: Sun Aug 05, 2018 11:28 am

Re: Constant bowel movement and burning bottom!!!

Postby Phillypatient » Sun Feb 14, 2021 3:14 pm

One thing to consider is a bidet. It cleans using water and even that temp can be controlled. I found it helpful because the constant wiping was a literal pain in the ass

Good luck
Male 48, dx 10/16 rectal cancer t3n1m0
Chemorad Dec 16
Xelox Mar 17-Jul 17
Lar Sept 17
Reversal Dec 17

tbt4snow
Posts: 31
Joined: Sat Oct 27, 2018 3:16 pm
Facebook Username: Tina tran

Re: Constant bowel movement and burning bottom!!!

Postby tbt4snow » Wed Feb 24, 2021 12:32 pm

I use:
opium tincture once/day
Cholestyramine twice/ day
That help control my diarrhea most effectively.
Also having a washlet toilet seat help too.
DX: CC stage 4/w ovaries & omentum mets in 12/17 49/F
High grade pT3N1bM1b sigmoid Adenocarcinoma colon
MSS-h TMB=16, NRAS-mutant
Lymph nodes: 1/2 left colic; 3/8 regional
12/2017: Exploratory laparotomy & resect of sigmoid & ovaries
Folfox/avastin 12 sessions from 1/8-6/18. 6/18 CEA 2.1
1/19: CT shows peri mets;
CEA: 12/18 5.1, 1/7/19 7.9; 1/15/19 9.1; 1/30/19: 10.6
4/3/2019 CRS/HIPEC after 4 Folfiry sessions...


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