Still losing weight and hair

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DarknessEmbraced
Posts: 3553
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still losing weight and hair

Postby DarknessEmbraced » Wed Jan 20, 2021 1:39 pm

Thank you Green Tea. I have been on prednisone in the past for my asthma I had to start taking prednisone on Saturday. 50mg a day for 5 days. Today is my last day of prednisone.I know it has side effects but I don't have a choice but to take it. My doctors won't prescribe medication for my nebulizer. They say my inhalers are enough. If I want a breathing treatment I have to go to the ER. I use saline in my nebulizer for congestion. I asked my family doctor's receptionist(doctors here don't have nurses) to ask her to call in more prednisone. I had a covid test Monday which was negative. I called my pulmonologist's office only for his receptionist to tell me that he's not due to see me until August. He refuses to see me more often than once every 9 months. My telephone appointment with my GI isn't until April! I knew he wouldn't take me seriously. My endocrinologist is waiting until March to do a parathyroid hormone blood test and calcium blood test. Then it's another 7 to 10 days for the report to be back. Apparently, he's going to talk to other endocrinologists who are supposed to be where I live. I highly doubt he will talk to anyone since he's been saying he would talk to his colleagues since October 7th! I don't feel like I can really rely on any of my doctors and most of the time I feel like I'm on my own.


Update: My family doctor called in prednisone. My boyfriend will go to pick it up later. I'm glad she did that.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3553
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still losing weight and hair

Postby DarknessEmbraced » Wed Jan 27, 2021 1:44 pm

I've been dealing with a really bad asthma flare since January 11th. I was on two 5 day prednisone bursts which didn't help. The shortness of breath and congestion kept getting worse. I went to the ER Saturday. Chest x-ray, ekg, and blood tests were normal. My family doctor called in a longer prednisone taper and medicated nebules for my nebulizer. I was weighed at the ER and found out that I weigh 112 pounds. I weighed 116 in October and 138 during the summer of 2019. My family doctor was going to order chest, abdominal, and pelvic CT scans due to the weight loss but changed her mind when she saw that it hadn't been long since the last time I had had scans. She ordered CEA and CA 125. My body hasn't liked going from 50mg of prednisone down o 45mg yesterday. Today, is particularly bad with the shortness of breath. I called my family doctor's office and was told that she would call me tomorrow. I kind of wonder if the weight loss is affecting the severity of this asthma flare? I've never had an asthma flare this bad. My family doctor in the ER said it's unlikely I would have covid since my test was negative last Monday.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

roadrunner
Posts: 97
Joined: Sun Jan 12, 2020 8:46 pm

Re: Still losing weight and hair

Postby roadrunner » Wed Jan 27, 2021 6:52 pm

I think it is very unlikely that you would be having shortness of breath due to COVID and have normal blood tests and a normal chest x-ray, as well. I hope you get this sorted soon!
7/19: Rectal cancer: Initially staged as IIIA, T2N1M0
Initially approx 4.25 cm, low/mid rectum, mod. well diff. adenocarcinoma
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (lots of side effects/reduced size est. 70-75%)
Switched to neoadjuvant chemorad in 11/19 (Xeloda and approx. IMRT, 60 Gy, 33 fractions)
Trying to achieve cCR.

DarknessEmbraced
Posts: 3553
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still losing weight and hair

Postby DarknessEmbraced » Thu Jan 28, 2021 10:00 am

Thanks. My family doctor is calling sometime today. I'm going to ask her to slow down the prednisone taper. You're right that it's unlikely to be covid.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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