Today

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
beach sunrise
Posts: 354
Joined: Thu Mar 05, 2020 7:14 pm

Today

Postby beach sunrise » Sun Jan 03, 2021 1:00 am

Hi, I am not a whiner or complainer usually but for the last few days I have felt terrible mentally. It doesn't help that the prebiotic I began taking is really tearing my stomach up and haven't had IVC for 2 wks because of the holiday. I know it bothers my family as they can tell something just isn't going right with me, ha.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

stu
Posts: 1429
Joined: Sat Aug 17, 2013 5:46 pm

Re: Today

Postby stu » Sun Jan 03, 2021 11:00 am

Sorry to hear that . I don’t blame you for feeling rough it’s a lot to go through .

I know as a daughter there were times I wanted to make things better for my mum but could not ! But thankfully they were not too often and the bettered days surfaced again . There is so much going on just now on top of treatment it’s hard to keep it all heading in the right direction.

Hope you feel a bit better soon .

Stu ( or his mum actually !)
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
beach sunrise
Posts: 354
Joined: Thu Mar 05, 2020 7:14 pm

Re: Today

Postby beach sunrise » Sun Jan 03, 2021 2:34 pm

Thanks for the sweet note!
I will be happy when I shake this feeling for sure.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Claudine
Posts: 460
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Today

Postby Claudine » Mon Jan 04, 2021 12:04 pm

Those are very understandable feelings, especially during the Holidays when everyone is expected to be cheerful! My husband was on the phone with his father recently, and when asked about new year resolutions, he replied, "hum, staying alive?". It can be very hard to be upbeat all the time, especially when you hear people having goals for the new year like "run a marathon" or "travel to blablabla" or "cut down on processed sugar"...

Sometimes I resent my husband's gloomy mood, but I cannot fathom what goes through his mind on a daily basis. He's trying very hard to be positive, and I'm trying very hard to give him space to be upset. My impression over the past 3 years, is that it's somewhat cyclical, even when we get not so good news, eventually he'll rally, until the next dark phase.

I hope the days growing longer will help! Take care XXXXX
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 51
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 12/17: nothing to report

User avatar
beach sunrise
Posts: 354
Joined: Thu Mar 05, 2020 7:14 pm

Re: Today

Postby beach sunrise » Mon Jan 04, 2021 6:41 pm

Thank you, Claudine! It is a combo for sure. It's terrible feeling this way. It didn't help any when I cleaned the closet out :) Found some things that really bothered me. I finally got IVC today so maybe that will boost my mood and YES we need longer days. I actually took a blanket out in the field and just layed in the sun but couldn't really just lay there and soak it all in because the dogs and cat all over me, lol...
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Rikimaroo
Posts: 333
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Today

Postby Rikimaroo » Tue Jan 05, 2021 10:20 am

Hi Beach,

Hang in there, we are in the same boat, sometimes wondering if our paddle will fall in the water, or it tries to fall in the water and we grab it right before it does and keep on moving. The struggle is definitely real!! LOL...

I also have my ups and downs. There are times when I am watching a movie, or youtube video or old pictures of myself before cancer struct me and I ask myself what the hell happened?? How did this happen to me?? Why Lord?? The colostomy, or the port on my chest, or the infusions of avastin every 3 weeks, or the xeloda pills every other 7 days, or the taking pills to control gas or everything that is now my normal compared to the easier normal life I had before 2016 cross my mind daily and remind me daily and sometimes discourages me daily, but I press on, for my family, for myself...

Oh and yes, there is some grump in me, I can be that grumpy old troll, I hate it, especially if I am feeling abdomen discomfort. Really makes you a grump. I usually hide in my man cave when I am a grump.

We got this I just need 30 more years, LOL...

Best
Rikimaroo
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

Claudine
Posts: 460
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Today

Postby Claudine » Tue Jan 05, 2021 10:52 am

[/quote] hide in my man cave when I am a grump[/quote]

LOL Riki, my husband does the same :D

We got this I just need 30 more years, LOL...


One day at a time eventually they do add up!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 51
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 12/17: nothing to report

Claudine
Posts: 460
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Today

Postby Claudine » Tue Jan 05, 2021 10:55 am

I actually took a blanket out in the field and just layed in the sun


Obviously you don't live in Montana :lol:
I did buy vitamin D for my husband, we tend to be chronically low here...
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 51
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 12/17: nothing to report

User avatar
beach sunrise
Posts: 354
Joined: Thu Mar 05, 2020 7:14 pm

Re: Today

Postby beach sunrise » Thu Jan 07, 2021 11:54 am

Thank you all for the supportive replies! I'm feeling better. It's so good to know I have people that understand!
I am focusing on my friend coming to visit next month.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google Feedfetcher and 4 guests