Oxaliplatin Dosage - Call Off

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Gloriamazz
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Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Thu Jan 07, 2021 3:39 am

Hi Green Tea,

I already made an appt with the main Campus of Cleveland Clinic next week. All the others are too far away. My daughter drives and is ill now and if have to I can drive my self

You were right about the chemo drugs and the reason not given to me,,

Oncologist going to run more tissue test And I am looking for a study

I don’t feel sick and don’t have issues with lungs. I don’t look sick that is why I had issues with Regorafenib, but she has nothing else except the long? That you mentioned,

I have been filling in the gaps in my cancer care history,

It is 3:30 am I don’t sleep well since my husband passed. I have Sun Downers
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021

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Green Tea
Posts: 290
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Second-opinion appointment

Postby Green Tea » Thu Jan 07, 2021 2:41 pm

Gloriamazz wrote:...I already made an appt with the main Campus of Cleveland Clinic next week. All the others are too far away...

Hi Gloria,
it's good that you have an appointment set up for next week. Is this an appointment with a specific person, and if so, do you know their name? If it's with an Oncologist on the Main Campus of Cleveland Clinic, then you might be able to find their name and other details about them (ratings, certifications, etc.) by using the link below. Click on the link and wait a few seconds for the search to be completed. (193 oncologists of one type or another there).

Oncologists, Main Campus, Cleveland Clinic

If you want to check out the Board Certification for the oncologist you will be seeing, or even your current oncologist, you can use the link below. On the form displayed in the link, enter the last name of the doctor, select Ohio as the state, and select Medical Oncology as the specialty.
Certification Matters

For your appointment next week, I think there are several issues that need to be addressed:
1. What was the MSI status of your primary tumor?
2. What was the KRAS mutation status of your primary tumor?
3. What was the BRAF mutation status of your primary tumor?

This information is needed in order to determine which treatment regimens are still available to you as well as which clinical trials you may be qualified for.

Gloriamazz
Posts: 87
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
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Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Sun Jan 10, 2021 1:53 am

Hi Green Tea,

The Drs name is Dr. B.Laderian. She is an Oncologist and there is not a rating for her.

There are others than don’t have a rating.
She does have her name on an article “Distribution of Cancer Genes”

No results for Board Certified

My daughter made the appt with Oncologist that were available. I will recheck

The ulcer I had on my toe was caused from Oxaliplatin I asked her about it and she won’t offer it to me again because of skin break down.
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021

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Green Tea
Posts: 290
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Oxaliplatin Dosage - Call Off

Postby Green Tea » Sun Jan 10, 2021 2:41 am

Gloriamazz wrote:Hi Green Tea,

The Drs name is Dr. B.Laderian. She is an Oncologist and there is not a rating for her.

There are others than don’t have a rating.
She does have her name on an article “Distribution of Cancer Genes”

No results for Board Certified....

Hi Gloria,
Actually, she is indeed Board Certified -- in two specialties -- but she got her certifications earlier when she was in N.Y., so her certifications don't show up in the Ohio list.

Here is a more complete list of her training, awards, fellowships, qualifications, licenses, publications, etc.:

https://www.doximity.com/pub/bahar-laderian-md

Gloriamazz
Posts: 87
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
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Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Sun Jan 10, 2021 2:49 am

Hi Green Tea

This is good I will stick with her.

Thank you
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021

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Green Tea
Posts: 290
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Oxaliplatin Dosage - Call Off

Postby Green Tea » Sun Jan 10, 2021 3:08 pm

Gloriamazz wrote:Hi Green Tea

This is good I will stick with her.

Thank you

Hi Gloria -

Good luck with your meeting this week. I hope the new oncologist can propose a better chemo routine for you -- something better than Regorafenib. Maybe something like FOLFIRI+Avastin. For reference, here are the main chemo drugs and chemo drug-combinations in use right now :

    Drugs used in Rectal Cancer
    1962 5-FU (Fluorouracil Injection) - no restrictions
    1998 Xeloda (Capecitabine) - no restrictions
    2000 Camptosar (Irinotecan Hydrochloride) - no restrictions
    2004 Avastin (Bevacizumab) - mCRC 1st line+
    2004 Eloxatin (Oxaliplatin) - no restrictions
    2004 Erbitux (Cetuximab) - mCRC 1st line+, KRAS wild type only
    2006 Vectibix (Panitumumab) - mCRC 1st line+, KRAS wild type only
    2012 Keytruda (Pembrolizumab) - mCRC 1st line, MSI-H only
    2012 Zaltrap (Ziv-Aflibercept) - mCRC 2nd line,
    2012 Stivarga (Regorafenib) - no restrictions
    2014 Cyramza (Ramucirumab) - mCRC 2nd line
    2015 Lonsurf (Trifluridine and Tipiracil Hydrochloride) - no restrictions
    2017 Opdivo (Nivolumab) - mCRC 1st line+, MSI-H only
    2018 Yervoy (Ipilimumab) - mCRC 1st line+, MSI-H only
    2019 Zirabev (Bevacizumab.alt) - mCRC 1st line+
    2020 Braftovi (Encorafenib) - mCRC, BRAF V600E only

    Drug Combinations Used in Rectal Cancer
    FOLFOX
    FOLFIRI
    FOLFIRINOX
    XELOX (CAPOX)
    XELIRI (CAPIRI)
    FOLFIRI+AVASTIN(BEVACIZUMAB)
    FOLFIRI+ERBITUX(CETUXIMAB)
    5FU+LV

Gloriamazz
Posts: 87
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Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Mon Jan 11, 2021 10:40 am

Hi Green Tea

I made an appt with a Colorectal Doctor. His name is
Bassam Estfan specialty is listed on his BIO with the Clinic.

The other Dr Landerian I was not comfortable with her not being Colorectal Specialist and apt is next Tuesday.
Last edited by Gloriamazz on Mon Jan 11, 2021 10:42 am, edited 1 time in total.
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021

Gloriamazz
Posts: 87
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
Contact:

Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Mon Jan 11, 2021 10:41 am

Hi Green Tea

I made an appt with a Colorectal Doctor. His name is
Bassam Estfan specialty is listed on his BIO with the Clinic.

The other Dr Landerian I was not comfortable with her not being Colorectal Specialist and apt is next Tuesday.

Have a great day!!!
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021

User avatar
Green Tea
Posts: 290
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Oxaliplatin Dosage - Call Off

Postby Green Tea » Mon Jan 11, 2021 1:20 pm

Hi Gloria -
It looks like you made a good choice. Dr. E has years of experience, many positive ratings on his profile, and he also specializes in second opinions in the colorectal area, so that's an extra plus. I hope you will be able to talk with him soon.

Gloriamazz
Posts: 87
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
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Contact:

Re: Oxaliplatin Dosage - Call Off

Postby Gloriamazz » Tue Jan 12, 2021 1:18 am

Hi Green Tea,

He seems to be an excellent choice for Oncologist.

My appointment is 1/19. My Oncologist, Marissa Schwartzman does not have colon cancer listed on her specialties.

She wanted me off Chemo for only a month this will be a little over a month saw her last middle of December.
I pray he can help me more than Dr. Schwartzman, even if it is a second opinion.

Thanks to you I am learning how to get info from the cancer world and understand what I am doing.
June 2018 Colonoscopy
2.6 adenocarcinoma
8/8/18 APR
Colostomy
March 19 CT 2 lung nods
April 29, 2019 Pelvis leision 1.8 x 1.8 cm
7/22 - 7/29/ 2019 5 radi
no chemo 10 month
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/20 Aborted Folferi
12/14/20 CT tumors grow and new ones
Resume chemo Jan/4/2021 Stivarga using pill
12/14/2020 Folferi not working lung tumors grew and have cluster of new ones
break going on pill drug Jan 2021


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