Stage 4 “no cure without surgery”

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CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 4 “no cure without surgery”

Postby CRguy » Thu Dec 24, 2020 1:42 am

stu wrote:Hi ,
I shared this once on here about ten years ago and it created a big debate about my mum being in denial and needing a reality check .
CRGuy had to come to my rescue back then ( different user name ) It was a bit of a shock for me at the time as I felt she was awash with reality checks .

As my best buddy Brownbagger here once said ..." Just one of the many fine services we provide ! :shock: :mrgreen: "

Seriously, VERY glad to have helped out here for you.
The CRC Journey can be an intimidating experience
and NOBODY should feel intimidated or unwelcome on this forum.

WORD !

Thanks for hanging in there stu
you are ALWAYS a supportive and positive member here !

MEGA BEST WISHES to you and you family
for Christmas and always
Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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ginabeewell
Posts: 473
Joined: Wed Oct 24, 2018 10:30 am

Re: Stage 4 “no cure without surgery”

Postby ginabeewell » Mon Jan 11, 2021 2:56 pm

Today, I rang the bell!!!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

AmyG
Posts: 358
Joined: Tue Dec 25, 2018 8:08 pm

Re: Stage 4 “no cure without surgery”

Postby AmyG » Mon Jan 11, 2021 5:49 pm

Holy shit!!!!!

That's fantastic, I'm thrilled for you!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Claudine
Posts: 460
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage 4 “no cure without surgery”

Postby Claudine » Mon Jan 11, 2021 5:57 pm

Heck yeah! Way to start 2021 in style!!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 51
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 12/17: nothing to report

Gravelyguy
Posts: 348
Joined: Thu Jul 05, 2018 6:03 pm

Re: Stage 4 “no cure without surgery”

Postby Gravelyguy » Mon Jan 11, 2021 9:53 pm

Way to go Gina!
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

Punky44
Posts: 464
Joined: Mon Oct 01, 2018 4:29 pm

Re: Stage 4 “no cure without surgery”

Postby Punky44 » Mon Jan 11, 2021 11:49 pm

Just getting caught up on this thread but I am inspired by your optimism and fighting attitude and then I am inspired again by all the awesome advice and reasoning to your question on this thread.

What a great group of people here.

Happy you rang in the new year!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0
Latest update: 12/17/20: Clear CT; CEA 3.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Siti
Posts: 185
Joined: Thu Aug 01, 2019 10:58 am

Re: Stage 4 “no cure without surgery”

Postby Siti » Wed Jan 13, 2021 9:05 am

Optimism is half battle won! You’ve been an inspiration to many and don’t let anyone tell you otherwise. I’m happy you rang the bell!
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

boxhill
Posts: 662
Joined: Fri Apr 06, 2018 11:40 am

Re: Stage 4 “no cure without surgery”

Postby boxhill » Sat Jan 16, 2021 4:23 pm

Yippee!!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

stu
Posts: 1429
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 “no cure without surgery”

Postby stu » Sat Jan 16, 2021 7:26 pm

Powerful.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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